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Courtney Mapson
MemberHello everyone,
Your wonderful Senior Instructors of the Lower Mainland have been looking for a way that we can help out with the fight to make ABA medically funded and to create academic chairs at Universities in Canada (so we don't have to all leave Canada to pursue a career in the field)…. Well, we've finally come up with a way to help.
We have created and entered a team into the Vancouver Sun Run. The "Medicare for Autism" team is planning on walking united with clipboards and petitions in hand.
The Vancouver Sun Run is expecting upwards of 50,000 people to be in attendance this year – and our goal is to raise awareness about Autism and get signatures. There is always tons of media coverage for the Sun Run and many large teams get in the newspapers and on the news, so why not try and get our cause in the media?
Early registration is due Feb. 10th ($35.00), but you can register until March 10th ($40.00). Registration includes a t-shirt, which will have "Medicare for Autism" on the back.
See below for more information for registration:
The team Medicare for Autism has been registered for The Vancouver Sun Run, Sunday,
April 23, 9 a.m. Please forward this email to all potential team members.Race Category: 2006 Sun Run Create a Corporate Team
Team Name: Medicare for Autism
Team Number: 3973
Team Captain: Courtney PhillipsTo register for this team, if you have not already done so, simply follow the link
below:https://www.sporg.com/registration?link_type=form&form_id=35210&Team+Number=3...
If you encounter problems using the link above to register:
1. Visit http://www.sunrun.com/team/
2. Click on the Register as a Team Member link
3. Fill out the registration form using the team number as indicated above.ONCE YOU HAVE REGISTERED, PLEASE SEND ME A QUICK EMAIL (to cpagemapson@burnabyorthopaedic.com) WITH YOUR EMAIL ADDRESS AND NAME SO I CAN SEND OUT MORE INFORMATION TO EVERYONE AS WE GET CLOSER TO THE RUN. Also, this will help me to know how many people to expect.
PLEASE PASS THIS INFORMATION ALONG TO FRIENDS/FAMILY ETC!!!
Thank you!
Courtney Phillips
cpaigemapson@burnabyorthopaedic.comMemberHi,
Just a quick question for parents.Do you know if as therapists, are we classified as employees or are we self-employed?
ICBC is trying to claim that my insurance is not valid b/c it is not business insurance, I only have to and from work and pleasure use.
Your input on this matter would be greatly appreciated.
Thanks.
Courtney
cpaigemapson@hotmail.comMemberRegarding Criminal Record checks:
Our municipality (Coquitlam) is RCMP and they do criminal record checks for free when you say it is for volunteer work (and we've never been told that there is not enough "manpower" to do this).
My suggestion would be to send your therapist back to the RCMP and ask for a criminal record check b/c she/he would like to volunteer with young children (I wouldn't even bother sending her in with a letter). At the very least, they have to give her a criminal record check, even if she has to pay for it. I believe that they cost $45.00 if you have to pay.
I've never heard of someone being turned away – I believe she just has to fill out a form and they send it to Victoria to be completed – so not sure what happened in Richmond. I wouldn't think that the municipalities would be so different when both are RCMP.
Hope this helps.
CourtneyMemberI just had a moment while studying today, and thought about the potential costs of Autism treatment versus Cardiovascular disease treatment in Canada. I just thought I would put in my 2 cents as everyone else is!
100,000 people each year are diagnosed (or die) of having Cardiovascular disease. Cardiovascular disease is a preventable illness! According to the Canadian Health Agency, $18.5 BILLION dollars is the cost to the Canadian economy each year for cardiovascular disease treatment – which is a preventable disease!!
There are 100,000 children in Canada with Autism and 3000 new cases reported each year. Autism is not preventable, but treatable. Only $300 million is being spent on treatment – when Autism is not even preventable.
I'm not sure if I'm the only one making this connection, but how can the government turn their backs on children with Autism, when they can be treated, just like someone with Cardiovascular disease. Autism is not preventable, therefore, why hold their families accountable for funding their treatment? Yet the government is willing to spend $18.5 BILLION dollars each year on the treatment of a disease that is preventable – and is most often caused by the society in which we live(we live in a fast food world, where people work in high stress jobs, don't take care of themselves, smoke, drink etc.). How can they justify spending that much money on people who can be held accountable for their own illnesses? And yet, they then turn their back on innocent children who have a chance at a better future, and who can not be held accountable for being diagnosed with Autism.
Cardiovascular disease treatment is not said to be a fool-proof cure – neither is ABA therapy, but the point is that the government is willing to take the chance that someone might have a longer life expectancy if treated early for cardiovascular disease, however, they are not willing to fully fund ABA therapy that has research behind it showing that 47% of children in intense ABA therapy will lose their label?
This is just so mind-numbing to me! I've never heard of someone going in for a heart bypass and the doctor saying, "well, seeing as this might only be 50% effective, we'll only clear out one artery instead of these 3 that are clogged..it'll be cheaper on the system, and who knows if it will really work anyways". No, they do everything in their power to treat this disease which is self-induced!
Well, this is what the government is doing to children with Autism. They are only funding these programs partially (and minimally I must add) – and why????Compare the EIBI funding with Cancer treatment – yes, early detection of cancer provides the best chance for recovery, however, hospitals don't stop treating people with cancer if they were not detected early enough, or if they've been in the system for too long. The key here is that yes, early detection and treatment provides the best chance for recovery, but it does not end there. Same as early intervention provides children with Autism with the best chance at becoming fully funcioning members of society, but why should we turn our back and deem these children as "untreatable" once they turn the magic age of 6?
While cardiovascular disease treatment and cancer treatment may extend one's life – what about their quality of life? Many suffer after being treated for cancer because of the side effects of treatment etc.
Children with Autism's lives may not be extended, but their quality of life is greatly enhanced.How can the government be the one to decide which is more valuable? Every person is different! Cancer patients can opt out of treatment if they feel that their quality of life will be poor – they have a choice, children with autism don't have a choice – their parents are their voices and they are not being heard!
I am ashamed by the way our government has turned their backs on children with Autism – and ashamed by the way that the government continues to provide billions of dollars to treat preventable diseases caused by individual ignorance and bad choices. Maybe they should start holding people accountable for preventable illness caused by poor choices, and start helping those who never had any choices!
But what do I know…I'm just a student!
MemberI just had a moment while studying today, and thought about the potential costs of Autism treatment versus Cardiovascular disease treatment in Canada.
100,000 people each year are diagnosed (or die) of having Cardiovascular disease. Cardiovascular disease is a preventable illness! According to the Canadian Health Agency, $18.5 BILLION dollars is the cost to the Canadian economy each year for cardiovascular disease treatment – which is a preventable disease!!
There are 100,000 children in Canada with Autism and 3000 new cases reported each year. Autism is not preventable, but treatable. Only $300 million is being spent on treatment – when Autism is not even preventable.
I'm not sure if I'm the only one making this connection, but how can the government turn their backs on children with Autism, when they can be treated, just like someone with Cardiovascular disease. Autism is not preventable, therefore, why hold their families accountable for funding their treatment? Yet the government is willing to spend $18.5 BILLION dollars each year on the treatment of a disease that is preventable – and is most often caused by the society in which we live(we live in a fast food world, where people work in high stress jobs, don't take care of themselves, smoke, drink etc.). How can they justify spending that much money on people who can be held accountable for their own illnesses? And yet, they then turn their back on innocent children who have a chance at a better future, and who can not be held accountable for being diagnosed with Autism.
Cardiovascular disease treatment is not said to be a fool-proof cure – neither is ABA therapy, but the point is that the government is willing to take the chance that someone might have a longer life expectancy if treated early for cardiovascular disease, however, they are not willing to fully fund ABA therapy that has research behind it showing that 47% of children in intense ABA therapy will lose their label?
This is just so mind-numbing to me! I've never heard of someone going in for a heart bypass and the doctor saying, "well, seeing as this might only be 50% effective, we'll only clear out one artery instead of these 3 that are clogged..it'll be cheaper on the system, and who knows if it will really work anyways". No, they do everything in their power to treat this disease which is self-induced!
Well, this is what the government is doing to children with Autism. They are only funding these programs partially (and minimally I must add) – and why????Compare the EIBI funding with Cancer treatment – yes, early detection of cancer provides the best chance for recovery, however, hospitals don't stop treating people with cancer if they were not detected early enough, or if they've been in the system for too long. The key here is that yes, early detection and treatment provides the best chance for recovery, but it does not end there. Same as early intervention provides children with Autism with the best chance at becoming fully funcioning members of society, but why should we turn our back and deem these children as "untreatable" once they turn the magic age of 6?
While cardiovascular disease treatment and cancer treatment may extend one's life – what about their quality of life? Many suffer after being treated for cancer because of the side effects of treatment etc.
Children with Autism's lives may not be extended, but their quality of life is greatly enhanced.How can the government be the one to decide which is more valuable? Every person is different! Cancer patients can opt out of treatment if they feel that their quality of life will be poor – they have a choice, children with autism don't have a choice – their parents are their voices and they are not being heard!
I am ashamed by the way our government has turned their backs on children with Autism – and ashamed by the way that the government continues to provide billions of dollars to treat preventable diseases caused by individual ignorance and bad choices. Maybe they should start holding people accountable for preventable illness caused by poor choices, and start helping those who never had any choices!
But what do I know…I'm just a student!
MemberI have been asked to post this on behalf of a friend of mine. They are looking for a nanny for their children and have pretty much exhausted their options as none of the nanny's interviewed have been able to handle their children. Just wondering if anyone knows of a good nanny agency (who was able to provide a good nanny for an autistic child), or if anyone knows of any nannies working in the North Van. area who is looking for work.
They would also be interested in any people with experience with autistic children to babysit some evenings.
If you know of anyone or can help in any way, I can be reached at cpaigemapson@hotmail.com
If you are currently a therapist who would like to earn a little extra cash babysitting, please email me as well.
Thank you in advance for your help.MemberThis message is in response to Nancy Walton of Nov. 22nd.
I know that our public library (in Port Moody) carries CD-rom games (quite a selection actually), so this would be a good place to see if your child likes the computer games, before spending the money and finding out he isn't into one! I'm not sure where you are located, but my suggestion would be to check out your local library. They usually check them out for a week at a time. Hope this helps.
MemberATTENTION ALL PARENTS:
I am posting this ad of behalf of a family I work with;
ASBC Tri-Cities Community Group Meeting
Tuesday, September 16th, 7-9pm at the Coquitlam Public Library – City Centre Branch, 3001 Burlington Drive. It is behind Coquitlam Centre
and across the street from the City Centre Public Swimming Pool.We are pleased to have Ms. Cathie Camley as a guest speaker. A few of the positions Ms. Camley holds are Current Chair – Education Committee for
LDA-BC, Representative for LDA-BC With Coalition for Special Education, and on the Board of Directors-Federation for Invisible Disabilities.Ms. Camley is well known for her advocacy work and is the author of Becoming an Effective Advocate for Your Child. She is also the
Author/Facilitator of the Parent Advocacy Training Program. She has recently received
the Queen's Golden Jubilee Medal. Ms. Camley also has personal involvement in the area of parent advocacy in the public school system.The topic will be on Evaluating Your Child's IEP
1. Parent as Case manager
2. The 5 essential elements of an IEP
3. How to Evaluate Your Child's IEP
4. The SMART IEP Tool
5. What to Do When Things Go Wrong
This meeting will be chalk full of useful information as we enter into IEP season and there will a question and answer period at the end of Ms. Camley's presentation.
We welcome parents from all areas of the Lower Mainland, especially Vancouver and Burnaby where there is no ASBC Community group.
If you have any questions or need more specific directions, please feel free to e-mail me at eva@evaleeassociates.com. If you want a return
call, please provide your telephone number.We look forward to seeing everyone at our first meeting of the season.
Eva Lee-Pourzargham
ASBC Tri-Cities Facilitator
MemberI am wondering if anyone in the Coquitlam/Port Coquitlam/Port Moody area is using a Speech Pathologist in conjunction with their ABA program, and would be willing to pass their contact information to us. Or, if anyone knows of a good Speech Pathologist in this area who is taking on clients. Please email me at
cpaigemapson@hotmail.com. Thanks you.MemberHi,
I'm looking for a Visual Timer, one that is normally ordered through the Different Roads to Learning. Wondering if anyone is selling theirs or knows of another distributor in Canada/BC or of another place that has it or who has similar ones. Can email me at cpaigemapson@hotmail.com if you know of someone who sells them here. Thanks.
Courtney -
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