[Deleted User]

I received this email from a friend who shall remain anonymous regarding funding being transferred to community living. I know there has been some discussion about this before…

" I received an invitation to an all day meeting on Saturday Oct 26th 9:00 am – 3:00 pm from the community living office here. It appears that MCFD will be handing changing the system of distributing individaalized funding and handing this over to another body. The website, according to some other parents showing the recommendations to the Govt show that autism funding will be included in this package to this body, but these funds will not be earmarked for children with autism. This body is also supposed to implement a 17% budget reduction. Furthermore, it is proposed that families will be income tested receive services.

If anyone would like to attend this meeting, youcan rsvp to Karen, or Amanda at 467-8700"

I have not yet called, but my feeling is that this is a maple ridge meeting. However I highly encourage those of you in other areas to call your local office and get info on when they will be meeting. We must remain active, our funding is not secure, we can not fall asleep at the wheel for even a moment…

Our children must receive medically based treatment, all children of every background and from every family. Income testing tends to run at a ridicuously low amount. As a parent of 2 children with autism and a household on a 1.25 income (I work very part time) we struggle to pay for our children's programs yet we were not of a low enough income to qualify for any assistance. Did the government take into account that we had double to expenses to shoulder. No of course not!

please parents, call your community living office now, we can't allow this to happen, if it is indeed true.

Michelle

[Deleted User]

Can anyone respond with an answer/opinion on the recent post by Tamara Leger regarding Hon. Linda Reid, who made reference to the amount of funding being given out as "anywhere from $1500 to $2500 depending on proximity or remoteness".
We live in a remote area and get $1667 per month. Any extra funding would help us pay for flights and accomodation for our consultant every month and speech and language services. We have to cover all of this ourselves to bring these people here, approx. $1200 per month.
What did Linda Reid mean when she made these comments? I wasn't at the meeting (because we live in a remote area), and would appreciate hearing from anyone who was. I have tried contacting the ministers office, but no one was able to help me.

Sincerely
Allison Lillies
caneng@columbiacable.net

[Deleted User]

Great article got to say it's just awesome!

"MSP AS THE ONLY FUNDING FOR LOVAAS TREATMENT". That should be a headline for the front pages. Let's hope this happens.

My opinion of course, but a darn good one!

[Deleted User]

Hi Andrea,

There are few different options for the parent. The ABLE clinic in Surrey and EAP in Burnaby BC can help with the diagnosis.
Able clinic is 604 584 3450

EAP number is Burnaby, sorry I don't have it.

I agree that many well meaning doctors either misdiagnose or refuse to diagnose the child to spare the family. Well, I can say this that earlier treatment is the best. My son was also diagnosed over the toddler years and although we are in the process of Lovaas it makes it more difficult then if he were a toddler to begin therapy.

One thing your right parents SHOULD NOT feel quilty or blame themselves for the any diagnosis over the age of 3. Personally speaking I can say that.

[Deleted User]

I agree with Pete Stelmaschuk, my heart also goes out to Linda Cucek for her endurance and active cause for autistic children. I feel she deserves a warm thank you, for what she has done to help Sabrina with the Auton case.

Both ladies are great! The comparison of what these two ladies have done is unbeatible.
They truly are an inspiration to all parents and will truly make the diffence in our children's lives and generations to come. That there is unbeatible.

[Deleted User]

I agree with Pete Stelmaschuk, that Linda Cucek, is a great lady because she has endured so long to be an advocate for her son and other older children. She truly is an inspiration to others and Sabrina Freeman, is a great lady also for all the things she has done for FEAT BC. I feel people should applaud them both, Linda Cucek, does for sure deserve a thank you from everyone for what she has done to get the Lovaas treatment.

[Deleted User]

As a parent of an "older child", a parent who, through the years, has had success with both press and politicos, I have to say, without a shadow of a doubt, though I "done good", nothing I have done parallels the significance of the Auton case(s). Families of older children, families of children yet to be diagnosed, all should be down on their knees and thankful to FEAT. And just to be clear, coordinated by a most extraordinary lady, director, Sabrina Freeman, and led by a tenacious litagator, Brigitta (sorry, I can't recall her last name), FEAT need be recognized as a collective of committed individuals whose sole focus to achieve justice for autistic children has finally been achieved.
Congratulations, and thank you FEAT.

[Deleted User]

To Linda Cucek

Put a sock in it!

[Deleted User]

Melodie, if you want to thank someone who really had the vision that the results we all are going to enjoy was indeed possible thank Sabrina Freeman

[Deleted User]

Hi Everyone,

I think it is important that we develop a list of questions to ask our school board candidates at the All Candidates meetings. Can we start a thread on this? Sabrina, any advice from you as well as from other parents and professionals would be great.

Thanks,
Cheryl
Mom to Allie and Angel

[Author]

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