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MemberRegarding the vaccine discussions:
Some of the newer members of our board have expressed some feelings of anger or upset at how they have been treated regarding non ABA topics, I wanted to try to address this.
First let me say that we as "veterans" should perhaps deal with it in a non offensive way HOWEVER it is important to say that we parents who have been at this awhile also have interests and perspectives that those of you who are newer to this may not be aware of.
The FEAT board is restricted to discussions of scientifically proven (as in published in PEER reviewed journals) treatment. At this point in time this mans ABA. The parents who are part of this group have set up this board to discuss this only because there are many places to discuss other treatments. The autism society board is a great place to discuss alternatives.
Those of us who have been around since what I like to call the dark ages (the days when we received NO funding and were treated very poorly by the government – and yes the treatment you get now is 10x better than what we got when I first entered this realm) have been through many negative experiences. We need this realm and the powers that be set up this realm because of those negative experiences.
When my child was diagnosed, no one at the autism society would talk to me about ABA. No one would admit to knowing what it was and at my local Autism society meeting I was actually verbally attacked for showing interest in ABA.
Many of the "veterans" around us experienced much worse than me. When I stumbled accross FEAT, it was the first time someone provided me with information without consoling me for my horrible situation and giving me the sympathetic "this must be so hard for you". I was glad to finally get answers, information and to hear someone talk about science.
I'd spent so much time wading through the rest of it, I was glad to find a space that was devoted to only what I needed, information about an ABA program.
That is what this space is for, discussion of this science specifically because there are other places that discuss other treatments but it is hard to find a place that only discusses scientifically proven ABA.
There is a lot of misinformation that circulates in Autism. Even when it comes to ABA, there is good ABA and there is poorly managed, poor quality, improperly trained ABA providers. We should be thankful to have this one source of accurate information, where we can rely on the board to continue to provide us with the information on this one subject.
Please understand that we "veterans" have been through much difficulties, many challenges and dare I say times where evil prevails… we are protective of our board because it has been our lifeline. We welcome you and your discussions that are relating to the realm of this board and we encourage you to explore those other topics that interest you on other boards such as the Autism society.
We do understand your need to explore and find answers, we too were there once. But this board is for all of us, newbies and veterans, and for us that search is not relevant and carries the potential to detract from the purpose of this board. If we allow this board to be a source of information about all treatments, what will new people do when they need to quickly and efficiently find information about ABA only?
I hope this board will always be able to serve out its mandate, to cut through the crap the government shoves down our throats and provide parents with the information they need to start effective quality ABA treatment as soon as possible for their child. Because this board is here, many of you won't have wasted the time that our family wasted desperately trying to find information.
Perhaps we might be able to have some sort of automated email that is sent to new people explaining the purpose of this board? maybe we do something like this already – it has been a really long time since I've joined!!
and may I just say "welcome" to those of you who are new, welcome to our space, we are a little hot headed but that is also what makes us strong. WE have fought for our children and we continue to fight for yours. Hopefully you will never experience the things we have experienced at the hands of the government, its made us who we are, and if you are so unfortunate to experience these things, you might find yourselves in 5 years defending this board and I am.
MemberNancy,
Thank you. You understand that I need to investigate and although I may have a minimum of knowledge regarding autism, this is my own process, and I claim that right. As a new member with the "welcome" I have been given I honestly considered excluding myself from the board.
Before this, as you know, I have been more than been willing to help the common purpose.
I have only honestly been looking to help my son. This personal anguish has only been compounded by the hostility I have found in the Autism community regarding "treatment" (not soley on this board but in general).
We are investigating, looking for answers and doing the only thing we KNOW is proven ABA. This alone does not mean that as a mother/father, I cannot have other opinions, thoughts and treatments or investigate regarding such.
Quite frankly, I expected support.
MemberHello,
As I stated, my son has just been diagnosed. I have been put through the treatment maze, the blame game and the financal shock.
I am stunned at how closed minded people, doctors, therapists and parents of some Autistic children have been.
I have decided that I would look at everything with an open mind, therapy and causation included.
Personally, after researching I have come to the conclusion that ABA 32+ hours a week will be effective. This though many naysayers have said their is "no proof", "only one study", "it only works on 50% of the kids" and "you can't afford it" etc.
I will be trying chelation and ABA. Further if needed I will run down the street naked singing "God Save The Queen" if there is a chance it will help my son (this time I'll be sober ;).
This was MY decision. I would never criticize a parent for THEIR decision as I realize we only want to help our children.
To talk about the vaccines whether fact or fiction is part of this disease for some people. I refuse to negate the idea.
Questioning everything is the only way we find answers.
If someone had not courageously questioned the recovery of Autistic children, my son would be in an institution.
Shannon
MemberHello,
As I stated, my son has just been diagnosed. I have been put through the treatment maze, the blame game and the financal shock.
I am stunned at how closed minded people, doctors, therapists and parents of some Autistic children have been.
I have decided that I would look at everything with an open mind, therapy and causation included.
Personally, after researching I have come to the conclusion that ABA 32+ hours a week will be effective. This though many naysayers have said their is "no proof", "only one study", "it only works on 50% of the kids" and "you can't afford it" etc.
I will be trying chelation and ABA. Further if needed I will run down the street naked singing "God Save The Queen" if there is a chance it will help my son (this time I'll be sober ;).
This was MY decision. I would never criticize a parent for THEIR decision as I realize we only want to help our children.
To talk about the vaccines whether fact or fiction is part of this disease for some people. I refuse to negate the idea.
Questioning everything is the only way we find answers.
If someone had not courageously questioned the recovery of Autistic children, my son would be in an institution.
Shannon
MemberMonica,
Note also that the RhoGAM shot contains thimerosal, which children receive in-utero.
Further, studies that have been done with the MMR vaccine do not incude the cumulative effect of MMR, RhoGam, Flu, and Heb B.
As said before, in my opinion genetics and immaturity of the immune system can also factor in.
Regards.
MemberMarie,
My son was diagnosed last month. In response to the question regarding vaccination;
I cannot prove that vaccinations have caused autism. But, if I had half the information I have now I would never have allowed my son to be vaccinated at such early an age.
The most astounding statistic for me was that approx. one out of 15,000 non-vaccinated children have been diagnosed with autism yet these statistics rise to 1 in 166 vaccinated children are diagnosed with autism.
The new study, carried out by American paediatrician Dr Fouad Yazbak and Dr G S Goldman, tracks levels of autism in Denmark from 1980 – seven years before the MMR vaccine was introduced in Denmark – until 2002. Prevalence of autism among children aged from 5 to 9 stood at 8.38 cases per 100,000 in the pre-vaccine years of 1980 to 1986, and then rose to 71.43 cases by the year 2000.
Dr Samy Suissa of McGill University found that the rate of autism increases to a high of 27.3 cases per 100,000 two years after vaccination compared with just 1.45 cases in non-vaccinated children.
(Sources: Journal of American Physicians and Surgeons, 2004; 3: 70-5; New England Journal of Medicine, 2002; 347: 1477-82).
I believe that vaccinations, the increase in types of vaccinations (flu, Hep B etc.) and underdeveloped immune system and some genetic predisposition all factor into the equation.
Further, you can wait to vaccinate your children, and obtain thimerosal free vaccinations.
Here are some links so that you may also do your own research.
[http://www.yourlawyer.com/practice/news.htm?story_id=2915&topic=Thimerosal
[http://www.mercola.com/2004/sep/22/blaylock_vaccine_coverup.htm
MemberMarie,
My son was diagnosed last month. In response to the question regarding vaccination;
I cannot prove that vaccinations have caused autism. But, if I had half the information I have now I would never have allowed my son to be vaccinated at such early an age.
The most astounding statistic for me was that approx. one out of 15,000 non-vaccinated children have been diagnosed with autism yet these statistics rise to 1 in 166 vaccinated children are diagnosed with autism.
The new study, carried out by American paediatrician Dr Fouad Yazbak and Dr G S Goldman, tracks levels of autism in Denmark from 1980 – seven years before the MMR vaccine was introduced in Denmark – until 2002. Prevalence of autism among children aged from 5 to 9 stood at 8.38 cases per 100,000 in the pre-vaccine years of 1980 to 1986, and then rose to 71.43 cases by the year 2000.
Dr Samy Suissa of McGill University found that the rate of autism increases to a high of 27.3 cases per 100,000 two years after vaccination compared with just 1.45 cases in non-vaccinated children.
(Sources: Journal of American Physicians and Surgeons, 2004; 3: 70-5; New England Journal of Medicine, 2002; 347: 1477-82).
I believe that vaccinations, the increase in types of vaccinations (flu, Hep B etc.) and underdeveloped immune system and some genetic predisposition all factor into the equation.
Further, you can wait to vaccinate your children, and obtain thimerosal free vaccinations.
Here are some links so that you may also do your own research.
[http://www.yourlawyer.com/practice/news.htm?story_id=2915&topic=Thimerosal
[http://www.mercola.com/2004/sep/22/blaylock_vaccine_coverup.htm
MemberDavid,
You didn't list any contact information :-) I would be very intersted in talking to you regarding a team I work on. We are currently looking for a new team member. Our client lives in Burnaby and attends school in burnaby as well. Please contact me at Michelle_Karren@hotmail.com with the subject line application C team
MemberHi Folks,
Re: Brown Bag Session Date Change!!!We regret to inform you that do to unforeseen circumstances the brown bag session will have to be moved from Tuesday, March 1, 2005 to THURSDAY, MARCH 3, 2005. We deeply apologize for any inconvenience this may have caused you. If you have any questions or comments please do not hesitate to contact me by email at jweatherbee@autismbc.ca or by phone at 604-434-0880.
We do hope that you will all still be able to attend Thursday s group (Peer Play and Video Modeling presented by Tamara Leger) as it will be a very hands on and informative session.
Once again, sorry for any inconvenience and hope to see you all on Thursday.
Yours truly,
Jennifer Weatherbee
Brown Bag Session FacilitatorMemberFor your information, the Education Minister, Tom Christensen, will be in Coquitlam on Monday February 28, 2005 to meet interested parents from 2:30pm – 4:00pm in the Gallery Room at Winslow Centre.
I know I have a few questions …
t
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