[Linda Cucek]

James' Cucek and mother Linda will be on Global News tommorrow on Channel 13 at 6:00-7:00.

Be sure to watch it.

Regards,

Linda Cucek
James' Mom

[Linda Cucek]

Hi its Linda Cucek, I have an article titled " Port Moody mother of autistic son launches human rights complaint, it in the Now paper today on page 12.

There has been a new release concerning health care. I was speaking with Lou Sekora's secretary and she mentioned to me that we should lobby the new Health Transition Fund for Primary care–$800 million to help children with early intervention and autism devlopment programs etc.

We would need to go as a group of parents to visit Mike Farnsworth's office and mention the new release regarding the new Health transition fund.

If anyone is interested in lobbying this new release for funds such as Lovaas, please give me a call at 936-3635.

Regards,

Linda Cucek (James' mom)

[Linda Cucek]

I am in the Province Newspaper today on page A-13-
Mom Tackles Government–check it out.

Linda Cuek James' Mom

[Linda Cucek]

I was on the Bill Good Show today–

I am on the 11:05 show at track 43 or 44 — talking
1) Go to the CKNW website at http://www.cknw.com

2) Click on the link that says "Audio Vault".

3) Click on the Bill Good Show
August 30 . I was the second caller.

The subject had to do with the Supreme court decison regarding Lovaas Treatment regarding autistic children.

Best Regards, Linda Cucek James' Mom

[Linda Cucek]

I was on the Bill Good Show today–

I am on the 11:05 show at track 43 or 44 — talking
1) Go to the CKNW website at http://www.cknw.com

2) Click on the link that says "Audio Vault".

3) Click on the Bill Good Show
August 30 . I was the second caller.

The subject had to do with the Supreme court decison on autistic children.

Best Regards, Linda Cucek James' Mom

[Linda Cucek]

My Lawyer has accepted my Human Rights case regarding my 16 year old son with autism.

16 years with insufficient supports!

He says it may take up to one year but at least I have a lawyer to help me fight my battles and advocate for James now. I am not alone anymore.

I feel all of us parents that want the Lovaas treatment should help one another out. We will
become more powerful in numbers to fight the
decision of appeal made by Dosanjh.

Linda Cucek James' mom

PS We should all write a letter to the government about how appauled we are regarding
Dosanjh appealing the Supreme Court.

[Linda Cucek]

In regards to the article of Double-talk from Dosanjh Leaves Children Hanging Again–

I feel that Dosanjh is no better than Glen Clark, in fact he is much worse! I am also going to add how upset I am with how he reacted to the BC Supreme Court decision regarding the Autism Treatment. I think they should have elected someone who actually cares about the people. He is completely incompetent in the way he leads the province.

Linda Cucek ( James' mom)

[Linda Cucek]

Hi, I have been 14 1/2 years without support for my autistic son in late 1999 the Ministry of Children and Families came aboard. At this time I still have insufficient support because I have to wait another 1 1/2 years for a behavior consultant. Everywhere I turn with my son I have to go on a waiting list, this is extremely wrong.
There is no Planned Health Care for disability children.

James, will be sixteen the end of this month and
by the time the year 1/2 comes around he will be an adult. This is quite stressful and frustrating for our family. I don't feel an autistic child should have to go on a waiting list that has triple diagnosis. The bottom line is "Waiting Lists" should be done away with. Also, Gretchen Brewin, denied me my right to have the Louvaas treatment.

Linda Cucek
Jame's Mom & Advocate

[Linda Cucek]

To- Gary Ferrell-Collins
BC Liberal Finace Critic
From: Linda Cucek
Re: Formal Complaint regarding Insufficient Support

Dear Mr. Gary Ferrel-Collins:

We as James Cucek’s parents are writing to you in regards to insufficient support.

Our son James Cucek, has a multiple diagnosis of Autism and Schizophrenia & psychosis.
It has been at least seven weeks since James has been discharged from Children’s Hospital and there is still no youth care worker working with him, yesterday Katherine Urquhart, came to visit me with Lyn Taylor Scott, Coordinator of Respite Services, Katherine told me I would be getting ten hours a week for James a Youth Care worker. Our family has been in need of a Youth Care worker for sometime.

The Laurel Group has been involved since November, we feel that ten hours a month that is allocated to each client, which includes telephone calls, meetings, report writing and travel time is not enough for a child such as our son James which has multiple diagnosis and she does not address our needy child .
James requires a skilled consultant who probably spends 30 hours the first month to six weeks observing him. This has not happened to our son James. This consultant left on a month holiday, just as James was released from the hospital and at this time we needed her the most, and no one else was able to offer back-up when she left.
We have had no training. We need to be taught exactly how to deal with James’ Autism and other diagnosis. We are also worried about the effects of the medications on James behavior. We will need a great deal of coaching in order to support James to become independent. We would feel more comfortable with CBI Behavior consultant.
James, was born in 1984 – I have had no supports since late last year when our family began to become very stressed out on how to deal with James, I feel its time we get the proper supports in place.

Best Regards,
Stan & Linda Cucek

PS I listened to a talk show you were on – you mentioned that the funds in excess of seven hundred million dollars were initially "ear marked", for health. The former minister of finance said it was not approved and therefore never released – over one hundred million dollars was set aside for disability children is this why my son James and other children are not getting the proper support? Please email me back I would like your answers to my questions and suggestions on what to do? The Mayor of Port Moody, wrote a letter to Mike Fernsworth, Minister of Health – because I have no supports in place for James and he never replied back. Also, I read in the newspaper a disability person with Schizophrenia was shot because he was on the streets and didn't take his medications – I feel there is no proper supports for disability people at all. Something has to be done about this.
I WOULD LIKE TO EXPLORE A CLASS ACTION LAWSUIT.

MY SON JAMES IS 15 YEARS OLD, I BELIEVE LOVAAS
WAS AVAILABLE WHEN JAMES WAS YOUNGER BUT NOT OFFERED TO
OLDER CHILDREN AT THIS TIME WITH AUTISM.

PLEASE GET IN TOUCH WITH ME IF YOU HAVE A TEENAGER
THAT HAS AUTISM SO WE CAN GO IN AS A GROUP TO EXPLORE A CLASS
ACTION LAWSUIT FOR LOVAAS.

MY PHONE NUMBER–936-3635 LINDA CUCEK
Please tell me what you think about this? F.e.a.t. is suiing for the younger children regarding Lovaas treatment, but also the older children need this treatment.

[Linda Cucek]

I WOULD LIKE TO EXPLORE A CLASS ACTION LAWSUIT.

MY SON JAMES IS 15 YEARS OLD, I BELIEVE LOUVAAS
WAS AVAILABLE WHEN JAMES WAS YOUNGER BUT NOT OFFERED TO PARENTS AT THIS TIME WITH AUTISTIC CHILDREN.

PLEASE GET IN TOUCH WITH ME IF YOU HAVE A TEENAGER
THAT HAS AUTISM SO WE CAN GO IN A GROUP TO EXPLORE A CLASS ACTION LAWSUIT FOR LOUVAAS.

MY PHONE NUMBER–936-3635 LINDA CUCEK

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