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  • in reply to: Room Three: Discussions about Government Topics #2737
    Linda Cucek
    Member

    Linda Cucek and Port Moody Secondary are proud to
    present Kim Peek Friday September 27—Time: 7-9
    evening—Port Moody Secondary–Kim Peek is an autistic mathematical genius, whose life was loosely portrayed in the Movie Rain Man — There is a $10.00 admission charge, with all proceeds going towards the James Cucek Trust Fund…

    Look forward to seeing you there!

    My email for any questions: lindacucek@shaw.ca

    in reply to: Room Three: Discussions about Government Topics #2733
    Linda Cucek
    Member

    Friday, September 13, 2002

    James Cucek, is again, in the hospital for side effects and the wrong medication. I spoke to male and female nurses John and Blgit which noted that, as of yesterday (Sept.12), James has been seen crawling along the floor each time he heads for the bathroom, situated directly across the hall from his room. To observe an 18 year old member of our family behaving in this way was extremely upsetting to us all. This represents "a milestone" in his over-all behaviour, for the worst. There was no doubt that James was clearly over-medicated.

    Why doesn’t Premier Gordon Campbell, just keep his promise to James and give him the Lovaas treatment. The medical community is just using him as "a guinea pig" in their experiments.

    Hope to see you at Port Moody Senior High School, September 27th, 2002
    from 7 to 9 pm. Please email me if you need any further information regarding Fran & Kim Peek, "Rain man", coming to Port Moody, BC. Lindacucek@shaw.ca

    Regards,

    Linda Cucek

    James Cucek’s mom

    in reply to: Room Four: School Related Topics #3024
    Linda Cucek
    Member

    Friday, September 13, 2002

    James Cucek, is again, in the hospital for side effects and the wrong medication. I spoke to male and female nurses John and Blgit which noted that, as of yesterday (Sept.12), James has been seen crawling along the floor each time he heads for the bathroom, situated directly across the hall from his room. To observe an 18 year old member of our family behaving in this way was extremely upsetting to us all. This represents "a milestone" in his over-all behaviour, for the worst. There was no doubt that James was clearly over-medicated.

    Why doesn’t Premier Gordon Campbell, just keep his promise to James and give him the Lovaas treatment. The medical community is just using him as "a guinea pig" in their experiments.

    Hope to see you at Port Moody Senior High School, September 27th, 2002–from 7 to 9 pm. Please email me if you need any further information regarding Fran & Kim Peek, "Rain man", coming to Port Moody, BC. lindacucek@shaw.ca

    Regards,

    Linda Cucek

    James Cucek’s mom

    in reply to: Room One: General Topics Discussion #4589
    Linda Cucek
    Member

    Again if you want to attend the conference the webpage is: http://www.autism2002.org or you can call:
    604-299-4001 or 604-878-0138.

    Dates: 27, 28, 29

    Place: Executive Airport Plaza
    7311 Westminister Highway,
    Richmond, BC

    I believe the last day of registration is
    Sept. 15th.

    in reply to: Room One: General Topics Discussion #4588
    Linda Cucek
    Member

    August 25, 2002

    To whom it may concern:

    I am a recently retired junior high school teacher (30 years of teaching!) and presently I work part-time at a music store -Tom Lee's
    Music in Coquitlam. A frequent visitor to the store is James Cucek, who often comes in with his mother, Linda Cucek, or a care worker. James is
    a very gifted musician, and he enjoys playing the pianos and keyboards in the store. Although he has been diagnosed as autistic, he has never
    caused any problems or had any behaviour difficulties in the store to my knowledge. He has always been polite, cheerful and co-operative with me, and I enjoy his visits.

    His mother, Linda, tells me that he is due for “ABA” – Behaviour Treatment therapy, but apparently there has been difficulty in finding
    care workers who are trained in these techniques. I feel that James has a great deal of potential and I find it very disappointing that bureaucratic complications could prevent him from getting a treatment which would help him realize his full potential and lead a much more
    fulfilling life. Thank you for your attention.

    Yours truly,

    Walter Coates

    A friend of James Cucek's at Tom Lee's, the Youth Care worker says his behavior is out of control, this is twice now she has not told the truth another time at the doctors office she said James slapped her, and my son Brian and mom were present and didn't witness James slapping her, why is she making up these stories, now James is back in the hospital due to side effects again for the 100th time, its like a roller coaster from hell.

    Linda Cucek "James Mom"

    in reply to: Room One: General Topics Discussion #4582
    Linda Cucek
    Member

    In regards to the anonymous posting:
    By Anonymous on Saturday, August 24, 2002
    I agree with what you are saying, my son James was diagnosed at 13 years old, so for all those years I had four wrong diagnosis until he turned 13, did I have any help, which was not much. I was put on long waiting lists, and I have been given many careworkers which are baby sitters because they are not professionally trained in ABA to know how to handle our autistic children.

    Instead they end up hospitalizing them because they don't know how to handle watching the child or the doctors don't really know what medications to put them on. The government is so wrong to put an age limit on it, especially in my case when I only found out James had autism when he was 13 years old. That really sucks and is unfair and discriminatory to all autistic's.

    Linda Cucek "James Mom"

    in reply to: Room One: General Topics Discussion #4581
    Linda Cucek
    Member

    In regards to the anonymous posting:
    By Anonymous on Saturday, August 24, 2002
    I agree with what you are saying, my son James was diagnosed at 13 years old, so for all those years I had four wrong diagnosis until he turned 13, did I have any help, which was not much. I was put on long waiting lists, and I have been given many careworkers which are baby sitters because they are not professionally trained in ABA to know how to handle our autistic children.

    Instead they end up hospitalizing them because they don't know how to handle watching the child or the doctors don't really know what medications to put them on. The government is so wrong to put an age limit on it, especially in my case when I only found out James had autism when he was 13 years old. That really sucks and is unfair and discriminatory to all autistic's.

    Linda Cucek "James Mom"

    in reply to: Room One: General Topics Discussion #4580
    Linda Cucek
    Member

    I can understand how expensive the conference is but the Laurel Group and Mainstream gave me permission to bring Fran and Kim Peek to the conference and they are paying for their expenses and of course he is coming here to lobby for my son James who was promised by the Premier Gordon Campbell, to get the Lovaas Treatment.

    He was 15 years old when he was promised and the Premier has abolished the Children's Commission and disbanded the Human Rights Commission and replaced the Human Rights Commision with Human Rights Tribunal, and of course he did away with Legal Representation for all BC Families.

    I have been waiting two years now to go before the Human Rights Commission, and No action has taken place. My son James keeps going in and out of the Royal Columbian Hospital, its like a roller coaster from hell, they never seem to get his medication right and he is very sensitive to medications in the first place.

    I read in the paper in regards to Autism 2002, called Vi Woods, and asked her why older children are not included in this conference? I said this is called discrimination, she kindly told me to hold while she spoke to a few people and said that it so happened two people had cancelled and that Fran and Kim Peek, could come to the conference. I was so happy I cried, after all I have been trying to raise funds to bring them here myself. Younger children do turn into older children and Fran Peek and his son Kim Peek, are coming here to tell the government age difference should not come into the picture. It cost more money to institutionalize your child than to have the treatment and your son or daughter gets to be part of the family. Also, Kim and Fran Peek will be appearing at Port Moody Secondary High School, located at 300 Albert Street, Port Moody. Date:
    September 27th, 2002 Time: 7:00 to 9:00 and their is a small cover charge. I made this possible so all autistic parents can afford to come and hear Fran and Kim Peek, based on an oscar winning movie "Rain man" which starred Dustin Hoffman and Tom Cruise.

    Fran and Kim Peek, requested us to have him speak at the High School to lobby for my son James and all the older children of BC.
    Hope to see you there! Linda Cucek (James mom)

    in reply to: Room One: General Topics Discussion #4572
    Linda Cucek
    Member

    I have a question for the chatboard? Does anyone know the name of the man that is sueing the government in Powell River, his wife wanted me to get back to her but I lost her address and phone number. I would be so thankful.

    Sincerely, Linda Cucek

    in reply to: Room One: General Topics Discussion #4571
    Linda Cucek
    Member

    Goodmorning! This is Linda Cucek-I just wanted to let you know the schedule for Fran & Kim Peek.

    If you look on the Autism Society's web page they have a real neat one.

    Friday night at Port Moody Secondary Scool
    Albert St., Port Moody -Kim and Fran will be there from 7-9 evening.

    Saturday at the Autism 2002 place: Executive Airport Plaza-7311 Westminister Highway, Richmond, BC. You have to call to book reservations to the conference before September 15, 2002; so they will know who is coming. Fee $236.00? for the congerence, and the High School is $15.00.

    If you have any questions you can call me at:
    604-936-3635

    Regards, Linda Cucek (James Mom

Viewing 10 posts - 21 through 30 (of 60 total)