[FEAT BC Admin]

This area is for discussions in general topics.

Topic

[Barbara Rodrigues]

Hi:

Can anyone tell me the name of an 'great' pediatric neurologist in Vancouver. We have heard of Mary McConnolly (sp). We are looking for someone who is familiar with autism and seizures.
We unfortunately experienced our first seizure on Friday night here in Penticton. And let's see so far, while Jeremy was having his seizure we took him to the walk in clinic where he was diagnosed with a bad case of the flu…'But Dr. I said, he's never had no eye contact, been so nonresponsive, he couldn't hardly hold his head up, drool coming out of his mouth//'DR. Well, he's really sick….

When we left the clinic we got him in the van and he started having facial ticks, that by the time we got him home ended up with full body seizure…
We got to ER and he was given meds there.

Then the pediatrician put us on Dilantin which he is still on (from what I have found out through the internet, not a good drug (behaviorally/mood wise) for our kids plus with the worst side effect profile of any of the anticonvulsants! Now they won't let us get him off this toxic stuff and no doubt the EEG will be read by either just a pediatrician or a neurologist who does not specialize in children and is used to looking at EEG's of stroke victims. Needless to say no one up here as any knowledge of autism. Our own Dr. had never heard of Landau Kleffner Syndrome.

So I am hoping to get Jeremy to someone with more knowledge as I do NOT want a repeat fiasco of what he went through concerning the autism diagnosis.

Onto, that what are our rights as parents of a child as to what treatment protocol we feel is best for Jeremy. So far, I have felt bullied and belittled by the medical professionals. Anyone know where I can find out my rights as a parent.

Jeremy is fine- has not thankfully had another seizure so far.

Thanks in advance for any help.

Barbara
Jeremy's Mom

Please excuse the rant but I am more afraid of the medical staff in this town than I am of the seizures.

[Sabrina Freeman]

A quick reminder note about the FEAT BC parent group meeting on Wednesday 01/17/01

-> 7:30PM at St. Francis in the Woods in West Vancouver. A map is available on the web at https://featbc.org/downloads/map.pdf

New parents are welcome — please pass on the information.

[FEAT BC Admin]

TO: FEAT BC Discussion Board/e-mail list members
FROM: Board Admin.
RE: Posting

Hi everyone,

A quick update regarding the status of the FEAT BC discussion board.

Posting has been unavailable for about a day due to a disk space issue at our web server — apologies for any inconvenience.

The problem has been corrected; the board is up and running.

Thank you.

Isaac (Miki’s Dad)
Board Admin.

[Diana Sabbagh]

Hi please i need a good therapist for my daughter is 4 years old, is so sweet girl We pay very very well 15 to 20 dolars per hour but i need a therapist with experience in lovaas method there is one consultant from u.s.a come to my home every 8 weeks do workshop . my e-mail is di20d@yahoo.com or disabbagh@home.com .

[Judy Anderson]

Does everyone know that there is a method of expensing all of your ABA costs as well as any costs that are recommended by a Doctor and that these costs can be pre-tax expenses?

The main requirements are that you need to have your own company or work for a company willing to understand the program, you need a letter from a Dr. saying that he/she recommends ABA and you need to sign up for the program through Frank Molinka 929-7241.

We have been doing it for a number of years. It is regularly checked by a local large accounting firm to ensure that the Gov. has not ruled against it. It costs 10% per year (still pre-tax dollars)which is a lot better than post-tax dollars and a measly 17% tax credit.

Good luck

Doug Anderson

[Deleted User]

Happy New Year Everyone!

I'm writing this note on behalf of a friend of mine. She has a four year old son with Brain injury. For the past 8 months she has watched us start up our daughter's program with great interest. She has been thrilled and amazed at her progress. After several months and good results, she began to look into doing something for her son.

A lot of his behaviours appear autistic, he stims a lot, flapping, running, yelling. But in many ways he does not fit as well. I guess because his brain was physically damaged at birth, he is not considered autistic.

They did find one psychologist who was able to design a program for them. iT sounds very similar theory wise to ABA. But being the sceptic that I am, I am worried about things for her.

I feel so lucky to have access to the resources of FEAT, to be able to find out about consultants, therapists etc by connecting with the group.

So my question is does anyone know of any families who have done something similar to this or of any groups for families in this situation? I did ask my consultant and she did not know of anything. She did recommend Dr. Glen davies and my friend did speak with him about it. I have also mentioned Dr. DeLevie to my friend.

If you know of anything out there please email me at fieldhkp@aol.com

Thanks
Michelle karren

[Sean and Debbie Griffin]

Feat B.C. Seasons Greetings and happy new year. May this be the year for our kids.A speacial hello to Sabrina. Debbie (hamilton. Ont.)

[Maureen St. Cyr]

Well, Peggy, the way I have it, it's 99 Ways, but
close enough…I've mailed you a copy, but
something tells me it's something the group could
do with:

99 Ways to say "Good Job"

You've got it made
SUPER
You're on the right track now.
That's right.
Exactly right.
You're really working hard today.
You're doing a good job
That's good
I'm proud of the way you worked today.
You've just about got it.
That's the best you've ever done
That's it.
Congratulations
That's quite an improvement
Now you've figured it out.
Great
You're getting better every day.
You did it that time.
That's not half bad.
WOW
That's the way to do it
Keep up the good work
That's the way
You haven't missed a thing
TERRIFIC
FINE
That's the best ever
PERFECT
BEAUTIFUL
You're really going to town
OUTSTANDING
FANTASTIC
TREMENDOUS
Now that's what I call a fine job
Nice going
That's great
Right on
Superb
Good remembering
Keep it up
You got (# of responses) right
You did a lot of work today
That's it
I like that
I'm very proud of you
That's a good girl
MARVELOUS
Way to work
That's really nice
Good going
Well look at you go
Way to go
You've got that down pat
Good for you
I think that you've got it now
Good job Ariel
You remembered
You figured that out fast
Now you have the hang of it
You are very good at that
That's coming along very nicely
That's much better
Good work
I'm happy to see you working like that
You are doing much better today
Now you have it
Hurray
You are learning fast
You did it
Good for you
Couldn't have done it better myself
You make it look easy
You really make my job fun
That's the way to do it
Outta sight
Nice going
Got it
SENSATIONAL
That's better
Nothing can stop you now
EXCELLENT
That was first class work
WONDERFUL
Much better
You've just mastered that
That's better than ever

[Peggy Boon]

Hi again: guess you need my email address: ourhouse@direct.ca

Thanks again.

[Peggy Boon]

Hi everyone: I'm looking for "100 ways to say good job". If anyone has it and can e-mail it to me, I'd appreciate that. If not, please fax it to me at 940-1129. Thanks

[Author]

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