[FEAT BC Admin]

This area is for discussions in general topics.

Topic

[George Spencer]

Hi,Iam a parent of child with autism, I have heard about Dr.Carbone worshop's.Did anyone have gone to see his workshops, so can give me any idea?
Thanx
George

[Maureen St. Cyr]

The proposed PCARD program is a joke, and
an unacceptable one at that. I think we all
know this. Hopefully, our government in
waiting knows this as well, and if they don't,
we will let them know, loud and clear. My frank
suspicion is that any program instituted or
proposed by the New Dictatorship Party in the
dying days of their dynasty will be a candidate
for Liberal roundfiling anyway. If not, again, we
will encourage them to do so. The government
lost in court. There can be no breach of
charter
rights without a remedy. We will prosecute our
children's cases until they receive a just
remedy. There is no other way.

[Deleted User]

After careful consideration I have decided to let
FEAT parents know what I learned about the
PCARD program (now known as EIBI) over the
weekend. Not that we didn't know this already,
but this program our government is setting up
is nothing short of a "slap in the face". For
those parents who are counting on this as
their last hope, these are the sad facts.
1. they will only be taking 25 children in
Victoria, 25 in the Interior, and 25 in the Surrey,
Delta, White Rock area (Langley, Vancouver,
Abbotsford etc. are not included)
2. children will be ages 2-4 (no child born
before April '97 will be accepted)
3. program will only provide 20 hours/week of
ABA therapy "using discrete trials and natural
training" (when asked if this was Lovaas style
ABA, the answer was "that will be part of it")
4. Delta association has hired 15 therapists
and are in the process of training them now
under Dr. Gerry Kysela who set up Autism
Linkages in Edmonton (when asked if the
program would be anything like the one in
Edmonton, the answer was "NO")
5. within the next 3 years they will be setting
up a program that will include children up to
age 7 (for some of us that means our children
will still be diqualified)
6. the consolation prize is: those of us who do
not qualify will be able to recieve "special
enhanced services" from the ministry for
Children and Families (ooooh, I can hardly
wait!!)

My purpose for this post is to make people
mad. What this government is doing to our
children is outrageous!! What about the
hundreds and hundreds of families who have
no help, no hope, and can not afford the cost
of real ABA therapy?? Does our government
expect us to be grateful for this "crumb" they
are throwing our way? Do they even have a
clue what Autism does in a family and how it
can push one to their very limits??
We need to do all we can to ensure our
childrens future.
(For those of you who have been accepted into
this governments program, and who
desperately need it, please know that you are
wished well. For those who were counting on
this program as a last resort, there is still
hope. If enough of us get fed up with this
garbage, maybe someone will listen…..)

[Tina Brink]

Hi,
I'm a therapist that worked with CEE's Kim Schmittou for 2 years. I have since lost touch with her after the breakdown of CEE and have lost her contact information.

Could anyone with her e-mail please post it or e-mail me at: tina_brink@telus.net

Thanks

[Deleted User]

I would like some help in starting a support group in Nanaimo for Asperger's. My son is 19 and diagnosed last year with Asperger's. He would desperately like to meet others with Asperger's. There are not many services in the Nanaimo area for someone like himself. Any help or anyone in the Nanaimo area who could help would be appreciated. Also anyone in the Nanaimo area with Asperger's or a parent of one please email me. Thanks.
Terry Tolmie

[Deleted User]

Hello All,

I've come across a resource that could be of great use for new and experienced ABA families. Its a training system called "help us learn". Keeping in mind that each consultant has their own way of doing things, this program has two manuals. THe first is a training manual for people who work with an autistic child using the ABA method or for grandparents, relatives etc so that they understand the importance of working with program goals. Its quite thorough and has homework and an final quiz.

The second manual is a program manager guide. IT covers everything from getting started, getting curriculum from your consultant, setting up your binder in an organized fashion, some ideas on data collection (of course this is very individualized to your consultant) includes ways of finding people, applicant questionnaires, interviewing questions, a contract for hiring, forms for reviewing staff after training, and periodic reviews, a training system that organizes how to train someone starting with observations, completing the 1st manual and then getting them started in the sessions. I really liked the training schedule that takes place over 14 full days or could be broken up into smaller segments over more time.

In reading over the binder, I couldn't help but think that had I used this resource a year ago, I would have saved myself a lot of grief.

I would also like to mention that I have no connection and do not benefit from my recommending this :-) I just like it and thought other parents might be interested in checking it out. THe price is $99 for parents. They have a website at http://www.helpuslearn.com

tHe woman who designed it is a parent of an autistic child who has been in a program for 3 or 4 years. It does not appear to be based on pseudo ABA such as numerous gov't supported programs found locally.

In the past I had purchased the Autism academy cd rom and I think this system is more efficient and comprehensive, although I have been pleased with the Autism Academy as well and have used it on several new recruits who completed it and then attended courses by Claire and Sharon and said the cd rom really helped to prepare themm for the actual work.

If anyone has questions, you can email me at Mkarren1@aol.com

[Peter McConnell]

A friendly reminder about the FEAT BC parent group meeting tomorrow night Wed 4/18 at 7:30 pm at St. Francis in the Woods in West Vancouver. A map is available on the web at https://featbc.org/downloads/map.pdf
topic: ASAT Conference held on March 8 – 10. Paper presented by Dr. Ronad Kallen: The Most Important Questions to ask about Autism Treatment.

New parents are welcome – please pass on information.

[Peter McConnell]

Next FEAT BC parent group meeting will be held on Wednesday, April 18th at 7:30 pm at St. Francis in the Woods in West Vancouver. A map is available on the web at https://featbc.org/downloads/map.pdf
– topic: ASAT Conference held on March 8 – 10. Paper presented by Dr. Ronald Kallen: The Most Important Question to ask about Autism Treatment.

New parents are welcome – please pass on information

[Sabrina Freeman]

By Sabrina Freeman (Freeman) on Wednesday, February 21, 2001 – 11:01 am:

A quick reminder note about the FEAT BC parent group meeting tonight, Wednesday 03/21/01

-> 7:30PM at St. Francis in the Woods in West Vancouver. A map is available on the web at
https://featbc.org/downloads/map.pdf

New parents are welcome — please pass on the information.

[Gary Groenke]

If there are any families requiring a Sr.Therapist that will take tabulate data, train therapists, streamline your program, resolve behavioural issues, communicate with your consultant and implement changes the consultant perscribes for your son/daughters program. I have one on my team that is looking for a k/g preschool (age 2-5)youngster to work with in the Coquitlam Pt. Coquitlam area (or within a 10 min drive of), to fill a 1pm. to 3pm. during the week time slot. Please call me at 944-0961 or e-mail me at fiberg @axion.net

[Author]

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