[FEAT BC Admin]

This area is for discussions in general topics.

Topic

[Deleted User]

Please look up this webpage regarding James Cucek:

{http://groups.msn.com/TheAutismHomePage/jamescucek.msnw

[Sabrina Freeman]

To FEATBC Chat Board members:

Over the past several months, there has been some confusion regarding rules governing use of the FEAT BC discussion forum. To address the ambiguities we’ve updated forum rules to be more explicit.

Many members of this forum may not have had the opportunity to review the forum rules so I have copied them below for convenience. I ask new members of the forum, and those unfamiliar with the Chat Board rules, to please take a moment to review the important guidelines.

Thank you.

Sabrina Freeman, Ph.D., Executive Director
FEAT of BC

__________________________________________________________
To be a member in good standing, please respect the following:

1) Be courteous to each other. We ask you to refrain from abusive language, insults and profanity (swearing).

2) Personal attacks are not permissible in the FEAT BC Discussion Group. We respect all opinions even if we disagree with them.

3) Professionals such as lawyers, autism consultants, advocates, speech pathologists, occupational therapists, psychologists, physiotherapists etc., are not allowed to advertise directly or indirectly using their professional designation or business contact information on this website. Existing autism therapists advising of their capacity to add families or those seeking employment as therapists i.e., paraprofessionals, are the only exceptions to this rule. The Board Administrator of the FEAT of BC discussion forum will make the final determination.

4) Organizations or companies sponsoring or operating autism conferences or workshops that are not sponsored by FEAT of BC, are not permitted to advertise — directly or indirectly — on the discussion board without prior written permission. If the conference organizers believe that the conference would benefit FEAT of BC Discussion Boards users, we ask that they please contact FEAT of BC to request permission to advertise on the board.

5) This is NOT a confidential discussion forum. Responsibility for posts to the FEAT BC Discussion Group lies entirely with the author who posted the original message.

6) The FEAT BC Discussion Group has been designed to discuss any topic relevant to home-based Lovaas-style A.B.A. programs (including Government funding and school issues). When we use the term Lovaas-A.B.A., we mean discrete-trial-based interventions (also referred to as Lovaas-type "applied behaviour analysis" or "Lovaas" behavioural treatment) for autism and related disorders. This is not an appropriate forum to discuss the latest, unscientific "cure of the day". If you would like to discuss alternative "options", please go to the THE AUTISM MAIL LIST.

The autism mail list is an open e-mail-based forum to discuss autism hosted by St. Johns University, and administered by Bob Zenhausern and Ray Kopp. It includes parents, autistic people, researchers, professionals, students, and other people interested in autism. Discussion is lively: many weeks see 500 or more postings. It is a very good forum for posing a question for which you do not know who would have the answer. To subscribe, send an email to: listserv@MAELSTROM.STJOHNS.EDU. Leave the subject line blank and in the body type SUBSCRIBE AUTISM [firstname lastname].

Important points to remember:

1) Although User ID is required to post messages to the FEAT BC Discussion Group, posted messages can be read BY ANYONE with access to the world wide web (this a web-based Discussion Forum). To help protect yourself from personal liability, it is important to remember the following: if you are criticizing a school, organization or group of any kind, please make sure to state that: ìThis is the experience I had with [the school, institution, organization]î, rather than general, global statements about the organization.

2) If you would like to help a parent out, but need to keep the information confidential, we suggest you e-mail that parent privately. If the person included an email address with their message, you can simply click on their email address and send them a private message. If they posted anonymously, post a request to the forum asking for the personís e-mail address.

We very much welcome your feedback and suggestions and look forward to you sharing your opinions and experience with the group.
__________________________________________________________

[Deleted User]

Speical Note re: ASBC|North Shore Social Stories Presentation

This presentation will be reprised in Surrey at a later date. Please contact Nancy Walton or watch the FEAT Chat Board for more details.

This Presentation will also be video taped.

Hope this helps & see you there!

tamara & anissa

[Deleted User]

ASBC|North Shore Lecture Series
Art of the Craft: Writing Social Stories that Change Your Child's World
Monday October 27; 7:00-9:00 pm; Peter J. Peters Room
West Vancouver Memorial Library

Social Stories are used primarily to teach children with autism to respond
appropriately to a given situation. These stories are short, positive
narratives that describe specific situations such as when to say thank you,
how to give a hug, sharing toys, washing hands, etc. They can also be used to
describe classroom routines, or variations in that routine (i.e. a fire drill).

Therapists, teachers, parents, or anyone working or living with a child with
an autistic spectrum disorder can learn to write social stories. These
stories often include information that helps autistic children understand
other people's feelings and thoughts. They require parents and
professionals to consider a situation from the perspective of the child with
Autism, and to identify and share information that may be missing through
use of the story.

Join us as presenter Kelley Lloyd-Jones, Therapist under consultant Shelly
Davis and Lead Therapist with Early Autism Project, long-time West Vancouver
SEA and business owner shares her 5+ years of expertise of creating social
stories that have helped children master their behaviours and learn to
"keep the little man inside".

We sincerely hope that you are able to join us for this fun-filled,
jam-packed evening workshop

We will help you slay your giant!

tamara leger & anissa lalani

****************************************************************************

Art of the Craft: Writing Social Stories that Change Your Child's World
Monday October 27; 7:00-9:00 pm; Peter J. Peters Room
West Vancouver Memorial Library

7-7:15 Introduction

7:15 – 7:35 Rationale for Social Understanding: Carol Gray
vs. Sumlin Method

7:35- 8:05 How to write and implement a social story

8:05-8:20 Hands on opportunity to write your own social
stories

8:20 – 8:40pm Group review and feed – back on individual
social stories

8:40- 9:00pm Other types of social stories and their unique
uses

9 – 9:15 Conclusion

[Jack Sweeten]

Hi,
Any help on the following questions would be greatly appreciated:

1)Has anyone out there used the PROMPT method with success to treat apraxia with their ASD child?
2)Has anyone used the KAUFMAN kit?
3)Has anyone implemented these treatment methods into an ABA program under the consult of a SLP?
4)Can anyone recommend a SLP trained with the above methods?

Thanks.

[Tina]

By Tina
Hi all,
My 4 years old child is on the waiting list on one to one support for preschool and the worker at the MCFD told me that he could get that soon. I wonder if any one know how to make them hire my own ABA therapist ( or at least hire one that has ABA experience) as they told me that they would not do so and they also said that the one they are going to hire would not support my child in preschool as a shadow there. I appreciate for any responds for this message, please share your experiences or ideas with me.I can be contact by this email account : tinakevin88@yahoo.com
Thank you very much.
Tina

[Deleted User]

To Barb Allan

I am a parent living in Victoria (Oak Bay)
Would like to connect.

email: francapastro@shaw.ca

[David Chan]

Hurray,

For the those of us with the Chutzpah, to
come and say it, "The emprorer has no
clothes"

The MOST important thing for us to do is get
the message out there. Lets face it, the
people that are doing ABA-programs, already
know and understand the score.

"Balance" my aunt fanny, We just need to
have good science-based treatment for our
children.

Finally, Thank you, to all the people, who carry
on fighting the good fight for our kids,and all
the other kids. People on the this chat board
already know who I mean.

Keep living La vida Lovaas

Dave,
Mr.P's Dad

[David & Lori DiSanto]

I guess the Knowledge Network was trying to achieve "balance". I don't think the producers would like to air a show which has two families blowing their chances and one family doing the right thing.

I guess the result is not surprising. Many of us at the time of diagnosis would come across professionals who could hardly even say the "A" word. Probably most of us had a hard time finding a professional who would tell us what kind of treatment our child needed.
In hindsight, did any of us really expect that a public television show would tell people what kind of therapy is the right one when our pediatricians wouldn't?

Instead, the show tries to give a sense of "balance" between the different therapies. Unfortunately this is completely futile. There is no "balance" to be had. Lovaas-ABA is in a whole different class.

Hopefully during future airings (it goes next week again) they will at least have an addendum stating the fact that Lovaas-ABA has peer-reviewed, controlled studies supporting its effectiveness, while the other two have only un-objective parental reports.

[Mike & Jean]

"The Road Back?"

I cannot begin the express my disappointment in the quality of journalism produced by the "Knowledge Networks?", The Road Back", autism documentary. What a disservice this program does to children affected with this most devastating disorder! This documentary portrays three treatments, LOVAAS-style A.B.A., DIR/Floortime and the governments own E.I.B.I. program. It fails to identify the scientific evidence or lack thereof for each of these treatments. This lack of key information is not new for those of us who know what the evidence is, but it may not be obvious to parents with newly diagnosed children who are struggling,trying to get factual treatment information. I will fill in some of the gaps the "Knowledge Network?" omitted.

1. The only science-based, peer reviewed,
evidence-based treatment is LOVAAS-style
applied behaviour analysis treatment. Amongst
other things, three B.C. courts found it to be
medically necessary treatment for the
condition of autism and the government has an
obligation to fund this treatment. See the
Auton and Anderson judgements (can be
downloaded on this website) for specific
details. Of significant note, these landmark
judgements and their precident setting
reasons are viewed as spectacular by a wide
variety of diverse international
organizations. These judgements and
their profound implications were not even
acknowledged in this program. There glaring
omission brings into question whether a
publicly funded broadcaster can be truly
objective.

2. DIR/Floortime therapy:
There is no peer-reviewed evidence which
supports its efficacy.

3. The government's own E.I.B.I program:
There is no peer-reviewed evidence which
supports its efficacy.

Autism is a devastating disorder. Without
effective treatment those effected with it have a bleak future of isolation and institutionalization. Sadly, this is the truth despite what the "professionals" or misguided parents may report.
Autism is not a personality quirk or a "culture";like cancer
or diabetes, it needs to be treated.
Our children have a constitutional right to effective treatment which is grounded in science, not quackery. Anything less is wholly unacceptable. Anyone suppressing the facts
is morally reprehensible.

For more information regarding science-based treatment contact: F.E.A.T. of B.C. or the Autism Society of B.C.

Our children are relying on us to be informed. Their futures depend on us.

Regards,
Jean Lewis, Director, F.E.A.T. of B.C.

[Author]

Replies