[FEAT BC Admin]

This area is for discussions in general topics.

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[Tina]

Hi All,
I'd like to join the conference on March 24
I am just wondering how I can find my MP or MLA. I know nothing relates to politicans but would like to know how I can find those people and persuade them to show up in the conference. English is not my first language and I need your guidance to do this.
Thank you in advance
Trinh

[Alan Campbell]

Hello All;

Just sent an e-mail to Mr. Mark Warawa (MP, Langley) inviting him to the press conferance next Friday.
I thanked him for his commitment to supporting this Bill during the election campaign and said I was certain I would see him next Friday as he is a supporter of Bill C-459 and his constituents.

See you all on the 24th,
Cindy Campbell

[Mike & Jean]

This is additional information regarding the Peter Stoffer press conference on March 24th.

Parents: Please invite your MP and MLA to attend this press conference, particularly MPs who publically committed to support the passage of Bill C-459 during the last election campaign. Blair Wilson, West Vancouver-Sunshine Coast, and Don Bell, North Vancouver.

Please advise me if your MP or MLA will be attending.

Thanks,
Jean

[Mike & Jean]

This is additional information regarding the Peter Stoffer press conference on March 24th.

Parents: Please invite your MP and MLA to attend this press conference, particularly MPs who publically committed to support the passage of Bill C-459 during the last election campaign. Blair Wilson, West Vancouver-Sunshine Coast, and Don Bell, North Vancouver.

Please advise me if your MP or MLA will be attending.

Thanks,
Jean

[Mike & Jean]

Attention all F.E.A.T. members and supporters:

We have great news to report!

Peter Stoffer, NDP MP from Nova Scotia, who tabled Bill C-459, which was a private member's bill to, "ammend the Canada Health Act to include IBI/ABA into Medicare" is coming to Vancouver next Friday, March 24th.

He is coming for the sole purpose of holding a press conference to announce his intention to re-introduce his Bill in the House of Commons when parliament reconvenes in April!

THIS IS A HUGE STEP FORWARD FOR OUR CAUSE!

Mr. Stoffer has asked us to invite as many ABA parents and supporters as possible to attend his press conference. There will be a number of speakers, including Peter Stoffer, Peter Julian, Dr. Glen Davies, Dr. Sabrina Freeman and others. Needless to say, we ALL need to be there!

Friday, March 24th @ 2:00 p.m.
Bonsor Recreation Complex in the South Burnaby Metro. Room,
6550 Bonsor Ave.
Burnaby, B.C.

The Bonsor Recreation Complex is close to Metrotown, so there is plenty of parking.

Our movement rarely receives "gifts" from politicians, so let's not take this one for granted by being apathetic, or relying on "other parents" to turn up. We (parents, grand-parents, therapists, friends, disillusioned Canadians) ALL NEED TO SHOW UP TO SUPPORT THIS!

Roxanne Black has undertaken the huge job of co-ordinating volunteers. She needs your help! Contact her •••.a.p. at bradrox@shaw.ca to see how you can help make this event a success!

Contact jean.lewis@telus.net for more information.

"Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has."
– Margaret Mead

See you all on the 24th.
Jean

[Deleted User]

By Myrica Sturrock (Sturrock) on Tuesday, March 14, 2006 – 4:02 pm :
Hello, ??My son is 8 years old and has high-functioning autism/asperger's. We are having trouble with his current school in Cloverdale. The school ….. have set him up for failure. We are fighting the school ….. Does anyone know of any great advocates in the Surrey school district? ….. Is there a parent support group in Surrey? Any suggestions? ??Thanks! ??Myrica

By Nancy Walton (Walton2) on Tuesday, March 14, 2006 – 10:33 pm :
Myrica, and any other Surrey district parents, please e-mail me ??Thanks, ??Nancy Walton

By Wendy Duman (Duman) on Wednesday, March 15, 2006 – 7:57 am :
Hi Myrica: ??My son is also 8-years-old and I believe has a diagnosis such as the one your son has. I live in Langley. ….. Your hunches are right and what they are teaching him. I will help in any way I can. I have been trying to hook up with parents for support. I think this a good way for me to start. Because the plan here is for us to help each other and others. ….?Sincerely, ?Wendy M. Durnan

How I See It All, 45 years on…

I was one of these kids in 1945 when I went to school for the first time and could not understand what the children were doing at 'Play time.' I just adjusted as well as possible — except to homework — I never did adjust to that…

In the 1980's I noticed symptoms of an IBS like condition and gradually became aware of the medical profession's inability to understand it. In the 1990's heavy metal toxicity started to destroy my mind and I had to diagnose it myself in order to find one reliable chelation therapist who saved the day for me. Luckily I'd used chelation for chemical analysis of trace elements in water and watercress from 1957 – 60 so it was easy to understand the use of the technique in the detoxification of a human system.

As symptoms of toxicity returned, slowly, 4 to 8 months after chelation had worked a small miracle on my memory and cognition it became necessary to search for a solution: which at that time seemed to be a few hundred micrograms of selenium and perhaps 200 milligrams of zinc a day along with multivitamins — between three week courses of chelation twice a year or so. It kept me alive and reasonably healthy.

When my heart got clogged up in 2003 my daughter took me straight to the doctor. My medical research lab tech work of the 1960's told me to cooperate and my experience of the limitations of modern medicine told me to cross over to traditional nutrition; exercise and modern supplements as soon as possible after surgery. The nutrition and chelation were much more successful this time as understanding of those fields has improved. I was able to think and remember well enough to diagnose my own austism by 2005, with the help of the Autism Research Institute <http://www.autismwebsite.com/ari/index.htm> diagnostic checklist. Then on to attack that problem: carefully. The surgery was very successful, too.

Some ARI doctors and researchers were leaders in the struggle to bring behavioural analysis to the treatment of autism 25 years ago. As far as I can understand the situation they became dissatisfied with the excruciatingly slow progress made by most patients and with the 50% success rate: an excellent outcome at that time but not good enough to rest on their laurels; especially when some of their own children became autistic and did not necessarily respond to treatment in the way they might have wished.

They have not thrown the Applied Behavioural Analysis baby out with the bathwater. They have kept the ABA baby and nurtured it, changing the bath and the water step by step, too.

Now they are successfully communicating across their various disciplines and beginning to test the metabolism of the children as part of the evaluation of their condition. Typically: ABA therapy is started for enough hours each week to result in real progress. When a benchmark of rate and kind of progress has been established a course of bio-chemical therapy, medical treatment, is tried out in line with test results. Often chelation of heavy metals or vitamin B + magnesium therapy is tried TOGETHER WITH the ABA treatment. Belt & braces; wheel club, alarm & immobiliser !

Results are very often a good recovery in half the time; not always, of course: some children just do not seem to respond very well. Is it scientifically proven ? Not yet — no. The ARI style of treatment combines ABA therapy, which is now scientifically well proven, with useful, practical medical treatments (of metabolic function) that are being applied in what may be viewed as scientifically controlled field trials. The evidence is being put together and carefully documented. The trials are practical in that they are based on medical test results and tried out on the basis of usefulness. If they work they are kept going. If they don't work they are dropped after a proper trial. If they make the condition worse they are dropped quickly; though it is hoped that the reason for failure can be determined to help design the next trial.

That is my perspective. Please use your own judgment for your own use of the knowledge: if possible with the cooperation of your own doctors and therapists. Video conferencing with DAN ! & ARI doctors seems to be proceeding in some States of the Union to the south of us and can be made available abroad if I am not mistaken. Video conferencing is now just about free of charge beyond the monthly net access subscription but the consultation would need to be paid for.

Two full conferences and many publications are available on the website.

Getting ABA therapy accepted is still a long, hard fight. The combination of ABA with medical tests and treatment is going to be harder because it involves multidisciplines and breaking down territories; it shines a light into many other difficult health problems; it threatens established channels of power and cash flow… and we are a good 50 years behind the times in BC. I waited about six months before writing this — I hope the time taken has made the argument presentable ?

Keep fighting — knowledge is mightier than either sword or bureaucracy,

George Wade

[Wendy Duman]

Hi Myrica:

My son is also 8-years-old and I believe has a diagnosis such as the one your son has. I live in Langley. Please feel to e-mail at wendy-durnan@shaw.ca. I am known to the Langley School District. Your hunches are right and what they are teaching him.I will help in any way I can.I have been trying to hook up with parents for support.I think this a good way for me to start. Because the plan here is for us to help each other and others. Again my e-mail address is
wendy-durnan@shaw.ca

Sincerely,
Wendy M. Durnan

[Nancy Walton]

Myrica, and any other Surrey district parents, please e-mail me at

wiklo@shaw.ca

Thanks,

Nancy Walton

[Myrica Sturrock]

Hello,

My son is 8 years old and has high-functioning autism/asperger's. We are having trouble with his current school in Cloverdale. The school only will allow him at school until recess until he can show that he can have one full week without any behaviour concerns. Every time my son "acts up" they send him home which has taught him a way to leave school if he wants to. Basically they have set him up for failure. We are fighting the school and have gone to the district without a lot of success. Does anyone know of any great advocates in the Surrey school district? Anyone know of a school with a good reputation for working with children with autism in the Surrey/Cloverdale/Langley area? Is there a parent support group in Surrey? Any suggestions?

Thanks!

Myrica

[Suzanne Paddinge]

I thought that I would include an example to further my post….

you could cut out the basic elements, dot, circle, curved line, angled line and straight line and have the therapist and your daughter collage them on a paper.

you could get her to try imitate drawing lines across the collage

later on your could get her to place the pre cut shapes by the therapists direction, above, below, on top, beside.

Then you could have her place them to represent something, a house, a person,

you can add drawing to the collage or representations as she is able.

You can also play games finding these basic elements in the room or elsewhere.

You will find that these collages look neat and are appealing in themselves and are fun to do.

Suzanne

[Author]

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