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Viewing 10 posts - 11 through 20 (of 39 total)
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  • in reply to: Room One: General Topics Discussion #4014
    Laurie Guerra
    Participant

    I have had ANCA do a presentation a few years ago to an ASBC community group. They believe that the autistic individual doesn't need to be treated. They think that others should just "get over" their prejudices and let 15 year olds have temper tantrums in malls. Needless to say I never had them back again.

    Untreated, autism will never be understood! It's incredibly sad to see.

    Wes's mom (recoverred from autism on a credible ABA program)

    in reply to: Room One: General Topics Discussion #4103
    Laurie Guerra
    Participant

    My son was diagnosed at almost 6 years old. He is now 10 and has recoverred from autism.

    Don't wait another day! Get on the best science based treatment program you can-Lovaas ABA.

    I can't guarantee you the same results but you will get results; possibly the same as me. You won't know until you try.

    I haven't posted on this forum for quite a long time now but it isn't because I don't care it is because now, thanks to so many of you I actually have a somewhat normal life. Autism isn't at the center of our world anymore and it is wonderful. I am just one story of so many. With treatment there is hope…………

    Laurie Romey

    in reply to: Room One: General Topics Discussion #4199
    Laurie Guerra
    Participant

    I thought I'd pull a David Chan…….

    I am sitting at poolside on vacation in Florida and thanks to ABA I can send my "once" autistic son up to our room alone to get his gameboy, go to the bathroom and bring back the room key with him. He returned shortly thereafter with a huge grin on his face. He did it all by himself!!

    Now if I would have bought into the, autism is a "culture" bunch (and believe me it existed when I was debating about whether to start ABA or not) I could have still been looking at my son screaming in a fit and not able to tell me he needed to go to the bathroom. Perhaps I could have told the other 200 people around the pool to just ignore him or not to look. How ridiculous.

    You're right Barbara, it's UNBELIEVABLE what some people buy into.

    in reply to: Room One: General Topics Discussion #4200
    Laurie Guerra
    Participant

    I thought I'd pull a David Chan…….

    I am sitting at poolside on vacation in Florida and thanks to ABA I can send my "once" autistic son up to our room alone to get his gameboy, go to the bathroom and bring back the room key with him. He returned shortly thereafter with a huge grin on his face. He did it all by himself!!

    Now if I would have bought into the, autism is a "culture" bunch (and believe me it existed when I was debating about whether to start ABA or not) I could have still been looking at my son screaming in a fit and not able to tell me he needed to go to the bathroom. Perhaps I could have told the other 200 people around the pool to just ignore him or not to look. How ridiculous.

    You're right Barbara, it's UNBELIEVABLE what some people buy into.

    in reply to: Room One: General Topics Discussion #4313
    Laurie Guerra
    Participant

    Hey Tony,

    You are SOOOOO not alone.

    age 0-2 normal son

    age 2-4 totally abnormal son, 2 year wait list till Sunnyhill assessment.

    age 4-6 family going nuts, son completely out of control, 3 assessments at Sunnyhill, diagnosis AUTISM, family now completely out of control too!

    age 6-6.5 contacted ASBC- no help, attended ASBC meeting with Dr. Glen Davies, heard about ABA, saw a recoverred child, started ABA program.

    age 6-9 did ABA program, 1 year marriage counselling

    age 9-present (still 9)-child recoverred, marriage recoverred.

    Try to attend Nancy's next meeting with Dr. Glen Davies. I will be there too as a guest speaker. Don't give up, it's worth the fight!

    Wes's mom

    in reply to: Room Two: Behavioural Treatment Topics #85
    Laurie Guerra
    Participant

    I'll try to make this short as I know you are all busy and if you're like me have a hard time reading extremely long posts………

    I want to tell you facts that I know first hand that anger me most. When we first got our autism diagnosis (with absolutely no hope whatsoever from anyone at Sunnyhill) we nearly lost our minds. Completely devastated, we called the Autism Society in hopes that we would get whatever help we could. I spoke directly to Deborah Pugh, acting executive director, who although sounded pleasant enough, told me nothing! I was sent a package the size of a novel with many different "options" I could take. Not ever did she or Claire Schuman, who both supposedly had autistic children,let me know of ABA or science based treatment. Not even after years of being an ASBC parent group facilitator, of which Claire Schuman was the overseer, did I get any info. about ABA.

    Tell me, if the 2 most senior, paid staff members at the Autism Society of BC withhold information about the best treatment available, or worse yet don't know the best treatment available, who is supposed to inform you??

    I want to say thank God for Sabrina Freeman and Jean Lewis who told me how to get help for my son. They didn't refer me to a manual that told me nothing.

    My son started on an ABA program at the age of 6 and a half years old and now at the age of 9 he is nearly recoverred.

    I am a board member at the ASBC and as long as I am I will encourage families to use Science-based treatment and to date ABA is the only one. Not a form of it, not based on it but "IT"-Lovaas ABA.

    The ASBC is not only about treatment issues, but for so long now it has avoided them that perhaps it seems as though the pendulum has had to swing the other way. This board of directors get nothing in the way of financial gain. They are a group of individuals that care about your kids. Volunteering as a director takes a lot of time.

    For all parents out there of autistic children, never, ever give up. There is hope!

    Thanks FEAT of BC!!!

    Merry Christmas and Happy New Year!!

    Laurie Romey, director ASBC

    (ACT-BC couldn't see this director as being all that bad since I worked under them, Claire and Deborah for 2 years)

    in reply to: Room Two: Behavioural Treatment Topics #88
    Laurie Guerra
    Participant

    Mina,

    We started an ABA program when my son was 6 and a half years old. He is now 9 and has near recoverred!!

    It's never too late…….

    Laurie Romey

    in reply to: Room Three: Discussions about Government Topics #1459
    Laurie Guerra
    Participant

    Andrew,
    Could you please e-mail me privately with your e-mail address?

    I am meeting with my MP tomorrow, Thursday, with 50 signatures on the petition. I am also the parent of a child that has reached near recovery and am on the board of directors at the ASBC.

    Laurie Romey -laurieromey@shaw.ca

    in reply to: Room Two: Behavioural Treatment Topics #113
    Laurie Guerra
    Participant

    I sit and ponder, "if we are the losers, just who are the winners?" I just can't imagine any gov't official saying, "Yeah, we don't have to treat those kids!"

    For the first time in my life I am truly ashamed and disgraced to be a Canadian. Our nation could have set such an amazing precedent but instead took the very "low" road.

    David, once again you said it, let's DO something, not just be sorry.
    It's like a good vs. evil, God vs. the Devil, David vs. Goliath………….
    There just has to be another road to take.
    Lets's just brush off the dirt, rise back up and and make good of the saying, "IF YOU DON"T QUIT YOU"LL WIN!!

    They messed with the wrong people!

    Wes's (a recoverred autistic child, thanks to y'all) mom,

    Laurie

    in reply to: Room Two: Behavioural Treatment Topics #133
    Laurie Guerra
    Participant

    Just another note to add, even the service providers referral form is a gov't document.

Viewing 10 posts - 11 through 20 (of 39 total)