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  • in reply to: Room Three: Discussions about Government Topics #23044
    Laurie Guerra
    Participant

    Hello Andrew and Franca,

    The Dir. of Operations at Autism BC, Andrew Pinfold has been gathering information on provincial autism budgets across the country. Apparently Québec’s plan is grossly underfunded. AFU funding alone in BC is 75 million, then add respite, at- home program and Ministry of Education transfers and the Québec program looks even worse.

    I’ve asked Andrew Pinfold to join the Feat of BC’s Discussion Forums so he can add to these discussions.

    in reply to: Room Three: Discussions about Government Topics #22252
    Laurie Guerra
    Participant

    Consider attending the public consultation happening today in Vancouver.   The Federal  government is consulting Canadians to help develop accessibility legislation for Canadians with disabilities.  We need all the voices from the “autism”  community that we can get.

    Details can be found at :

    http://www.esdc.gc.ca/en/consultations/disability/legislation/index.page

     

     

    in reply to: Room Three: Discussions about Government Topics #2308
    Laurie Guerra
    Participant

    I just wanted to say that I have had more opportunities to promote science-based treatment for autism since I started campaigning than I have in the entire time since getting an autism diagnosis!!!

    I've talked to people from all over Surrey including heads of both universities. I have told so many about the documentary, "Medicare's Orphan's" and have had numerous e-mails of thanks from those who have viewed it.

    People still don't believe that autism is treatable and some are still in the dark ages when it comes to treatment options.

    Parents don't stop advocating for your child with autism and every other child out there with a diagnosis. Tell them all about ABA; the only science-based treatment for autism.

    If we don't quit we will win!

    Oh… and don't forget to vote tomorrow.

    As Dione posted;

    Jodie WICKENS – Coquitlam School Board
    Mike LEWIS – West Vancouver Councillor
    and me, Laurie GUERRA- Surrey Councillor

    in reply to: Room One: General Topics Discussion #6511
    Laurie Guerra
    Participant

    As I sit here with tears rolling down my cheeks, I am trying to think of the words to say to thank Sabrina and Jean for everything they have done.

    I remember driving my non-verbal, autistic little boy to his first day of kindergarten, 13 years ago and today he drove himself to school for the last day! That was emotional in itself.

    I have just come from the high school awards ceremony where my now 18 year old has just received three academic achievement awards! He was the top student in Biology 12, Physics 12 and Calculus 12.

    I had no idea this was even possible back when we first got diagnosed. Thank you so much for pushing me in the right direction. I am so glad I listened and did the work.

    Thanks ladies a million times over.

    For all those of you still "in the trenches", remember, with treatment there is hope.

    What a great day!

    in reply to: Room One: General Topics Discussion #6617
    Laurie Guerra
    Participant

    I write this email to invite you to attend an information session on Registered Disability Savings Plan (RDSP); The (RDSP) Program introduced by the government in 2008 enables eligible Individuals with disabilities to receive up to $4,500 per year and up to $90,000 over life of the plan. Because people with disabilities and their loved ones face a distinct set of financial challenges throughout their lives, the RDSP’s helps them overcome their financial challenges.

    Session details are as follows:

    When: Tuesday, September 18, 2012

    Time: 5:30PM – 7:00PM

    Where: City Centre Library-Surrey (Meeting Room 120)

    10350 University Drive, SURREY, BC V3T 4B8

    As you know, many families worry about the future care of a loved one with severe disability.
    Kindly confirm attendance, and RSVP by either calling 778-565-3121 or by e-mail (vdhiri@globalsec.com).

    in reply to: Room One: General Topics Discussion #6667
    Laurie Guerra
    Participant

    It's days like these when I sit back and reflect upon the past. Not to bring up bad memories, but to look and see just how far we've come. Today, my son, diagnosed with autism at 5 years old, got his "N" drivers license.

    For those of you who are having a hard time with toilet training, issues around sleeping, eating, screaming, tantruming, and the countless other things autism brings, rest assured that with proper treatment your child will reach their potential. They might not drive a car; they might; but they'll get as far as they can.

    The day we were diagnosed (and I say we because it affects everyone in the family)all I could think about was how big of a trust fund we were going to need. Now, things are very different.

    So many people still don't know that autism is treatable. LET EVERYONE KNOW!!!!!! It is truly the only chance our children have.

    Thanks Sabrina and Jean!!

    Wes's mom

    in reply to: Room Two: Behavioural Treatment Topics #781
    Laurie Guerra
    Participant

    Just wanted to pass on some hope for those in the trenches………

    My son just turned 16 and on his birthday got his Learner's license. There were other children getting their "L" on that day too but there weren't any other parents with tears running down their cheeks when they got it. That boy couldn't talk until he was 6!!

    Thanks to this forum and esp. Sabrina and Jean, I learned what to do, did it and now I have the best outcome.

    My child has recoverred, but now the work starts! I will be there on April 30 for the Medicare for Autism Now seminar and so should you. Science-based treatment works and it needs to be available to EVERY child in this country who needs it.

    Together we can make it happen!!

    Laurie Guerra

    in reply to: Room One: General Topics Discussion #5468
    Laurie Guerra
    Participant

    Take note, Jen, I've posted on this board perhaps 2 times in the last year. I haven't the time nor the energy to be "restirring" anyone's pot. I watched the show for a half hour or more and for a topic so close to my heart I didn't see anyone "screaming" out the answer (which is what I said I wanted to hear.) My son has reached near recovery from this epidemic and it's thanks to listening to Sabrina and Jean "scream" out the truth. I will continue to tell the world that and expected to hear it in the near 40 minutes I tuned in to Larry King.

    in reply to: Room One: General Topics Discussion #5470
    Laurie Guerra
    Participant

    Hi all,

    Did anyone else see Larry King yesterday? I don't know about you, but every time I hear that Autism is going to be discussed on a Prime time show I get so excited that we are finally going to hear the truths about treatment and have the professionals scream out loud what we have been fighting for for so long. Once again, I was disappointed. I wanted to jump through the T.V. screen and yell, "Pick me, pick me to show you how important treatment is! Let me show you my son and how "typical" he behaves when you actually allow the science to work for you." Let's get Sabrina on Oprah or Larry King!!!!
    and oh, by the way please bring some books to the rally. I want 2 for me!

    in reply to: Room One: General Topics Discussion #5170
    Laurie Guerra
    Participant

    I haven't posted in quite sometime but heregoes…….We all saw Oprah and the "mommy instinct" with the dietary supplements (gluten/caseine free) and if all we listened to was "mommy instinct" I wouldn't have a RECOVERRED son (from Autism). Mommy instinct doesn't tell you to get Chemotherapy or Radiation if your child has cancer…. the specialist does. Who tells you what to do with Autism? Not mommy instinct, not the specialists (at least not when my son was diagnosed) but rather the amazing people at FEAT of BC. I listened to the "SCIENCE" and it works. Have never done a diet for my son but common sense told me if all he ate everyday, all day was noodles and chicken Mcnuggets it would not be a "good" thing. 1 in 500 kids will recover from autism on their own, 46% of children with autism doing ABA (science- based treatment) will be indistinguishable from their peers. Gee what would you pick?

    Laurie Romey, director ASBC

Viewing 10 posts - 1 through 10 (of 39 total)