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Mike & Jean
ParticipantNews from Medicare for Autism Now!
Check out the latest two extended interviews in our web-series: "Medicare's Orphans"
Episode 7: Stefan Marinoiu is a Toronto-area parent who came to Canada in 1980. In this powerful 26 minute interview, he describes the reality of living with a severely autistic child who has been denied treatment as a result of government's wilful neglect. He makes a clear-eyed assessment of today's politicians and make a compelling argument for why parents must be politically active.
Episode 8: Shelley Davis is a US based Behavioural Consultant who has consulted to BC families for the last 15 years. She is also a practicing attorney. She reviews two US laws – the IDEA (Individuals with Disabilities Education Act) and the ADA (Americans with Disabilities Act) and how determined parent advocacy attained both. She describes the stark contrast in approach and delivery of autism treatment between California and BC. In her experience the only reason for improvements in BC was the result of the work and advocacy done by focused and dedicated parents. However, in her view, we're still at the very beginning of the process. We need to continue to work together and have high expectations because it is so easy for children with autism to be pushed aside.
See the film and web-series at: http://www.medicareforautismnow.org Share us on Facebook
ParticipantMedicare for Autism Now! has just released Episode 6 of "Medicare's Orphans" web-series featuring experienced advocate and friend to many on this board, Laurie Guerra. She is a parent, advocate and director of the Autism Society of BC. In her 15 minute interview, she describes the impact of delays in diagnosis and lack of accurate treatment information. Her main messages to parents are not to be complacent about funding, it could be gone with a stroke of a pen and how advocacy is essential until treatment is universally accessible.
Go to: http://www.medicareforautismnow.org to watch the web-series and the full documentary, "Medicare's Orphans" Forward, share etc. with others
If you would like to know more about "Medicare's Orphans" and about those who produced and participated in this documentary including, Laurie, contact your local autism parent group and request this be an agenda item at a monthly meeting. Based on availability, we would be happy to discuss the documentary and its purposes.
ParticipantMedicare for Autism Now! has just released Episode 6 of "Medicare's Orphans" web-series featuring experienced advocate and friend to many on this board, Laurie Guerra. She is a parent, advocate and director of the Autism Society of BC. In her 15 minute interview, she describes the impact of delays in diagnosis and lack of accurate treatment information. Her main messages to parents are not to be complacent about funding, it could be gone with a stroke of a pen and how advocacy is essential until treatment is universally accessible.
Go to: http://www.medicareforautismnow.org to watch the web-series and the full documentary, "Medicare's Orphans" Forward, share etc. with others
If you would like to know more about "Medicare's Orphans" and about those who produced and participated in this documentary including, Laurie, contact your local autism parent group and request this be an agenda item at a monthly meeting. Based on availability, we would be happy to discuss the documentary and its purposes.
ParticipantDr. Glen Davies, well-known and respected by many who read this board is featured in the recently released Episode 5 of Medicare's Orphans web-series.
"Dr. Davies is a clinical child psychologist who has practiced in the Vancouver area for over 25 years. Today, over two-thirds of the children seen in his clinic are on the autism spectrum. In his 16 minute interview, Dr. Davies comments upon the dramatic increase in autism diagnosis over the last two decades. He discusses the transformational impact of ABA treatment, as well as the relative costs of not providing treatment – to autistic children, their families and society at large." "Autism is a huge public health concern…we would not tolerate this (lack of treatment funding) if it was cancer…our budgets for autism are arbitrarily capped…"
To see the documentary film, Medicare's Orphans and the first 5 episodes of the web-series, including Dr. Davies interview, go to:
http://www.medicareforautismnow.org They can also be seen on Facebook and YouTube. Please forward the link to others.ParticipantDr. Glen Davies, well-known and respected by many who read this board is featured in the recently released Episode 5 of Medicare's Orphans web-series.
"Dr. Davies is a clinical child psychologist who has practiced in the Vancouver area for over 25 years. Today, over two-thirds of the children seen in his clinic are on the autism spectrum. In his 16 minute interview, Dr. Davies comments upon the dramatic increase in autism diagnosis over the last two decades. He discusses the transformational impact of ABA treatment, as well as the relative costs of not providing treatment – to autistic children, their families and society at large." "Autism is a huge public health concern…we would not tolerate this (lack of treatment funding) if it was cancer…our budgets for autism are arbitrarily capped…"
To see the documentary film, Medicare's Orphans and the first 5 episodes of the web-series, including Dr. Davies interview, go to:
http://www.medicareforautismnow.org They can also be seen on Facebook and YouTube. Please forward the link to others.ParticipantMedicare for Autism Now! presents episode 4 of "Medicare's Orphans" Barry Hudson is a Toronto parent advocate and director of Medicare for Autism Now! In this 21 minute episode, Barry discusses the current reality of ABA treatment provision in Ontario. From his own personal experience, he emphasizes the need for parents to not be naive about the system and get involved in advocating in support of their children's healthcare. To watch episode 4, go to:
http://www.medicareforautismnow.org Watch, share, ACT.ParticipantLong-time Vancouver paediatrician, Dr. Melvin DeLevie's interview is now featured in Episode 3 of Medicare for Autism Now's web-series – Medicare's Orphans.
Dr. DeLevie has extensive experience dealing with children with autism. He is well known to many BC families for his tireless work on behalf of their children. His 20 minute interview is a powerful indictment of Canada's archaic approach to the treatment of autism which is in stark contrast to the treatment of children with any other disease or disorder. He gives examples of why social services personnel are ill-equipped to deal with what is in-fact a medical condition. He eloquently expresses his frustration with the "people in charge" who are both "blind and deaf" toward what he terms the "lost children".
To watch his interview, go to: http://www.medicareforautismnow.org and click on episode 3 Watch it, share it, forward it to your local MLA and MP. ACT NOW!
ParticipantLong-time Vancouver paediatrician, Dr. Melvin DeLevie's interview is now featured in Episode 3 of Medicare for Autism Now's web-series – Medicare's Orphans.
Dr. DeLevie has extensive experience dealing with children with autism. He is well known to many BC families for his tireless work on behalf of their children. His 20 minute interview is a powerful indictment of Canada's archaic approach to the treatment of autism which is in stark contrast to the treatment of children with any other disease or disorder. He gives examples of why social services personnel are ill-equipped to deal with what is in-fact a medical condition. He eloquently expresses his frustration with the "people in charge" who are both "blind and deaf" toward what he terms the "lost children".
To watch his interview, go to: http://www.medicareforautismnow.org and click on episode 3 Watch it, share it, forward it to your local MLA and MP. ACT NOW!
ParticipantGo to http://www.medicareforautismnow.org to watch Harold Doherty's featured interview. Watch, learn,share and ACT!
ParticipantGo to http://www.medicareforautismnow.org to watch Harold Doherty's featured interview. Watch, learn,share and ACT!
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