[Deleted User]

Clarification Required —

In last night's broadcast Pat Miranda mentioned a National Academy of Science 2001 study that was completed by a panel of "experts" over 2 years, with input from a variety of consultants, to look at treatment options and outcomes of children from 0-8years. She said that the study's finding could recommend no one treatment above another, but that they did recommend a set of "core principles" (that sounded like a description of ABA to me).

I was completely shocked: I thought Lovaas-ABA was the only science-based treatment. I have seen the incredible results myself on my own child and others that I know who are in ABA-Lovaas programs, and by observing the progress of those that have chosen a different path. I am particularly concerned of this misleading message for new parents entering "the spectrum" who may yet be undecided as to treatment preference.

Does anyone have the study reference or know more about this?

thanks,

tamara

[Deleted User]

We can totally relate to your situation as we are going through the same process ourselves. First it took months for a diagnosis to be completed – then a number of weeks more to research the various service providers in the Lower Mainland ( the majority of whom, in our opinion, are even lsess than so-so) only to find that the respected Lovaas ABA providers – backed by testimonials by other parents – all have waiting lists. I am still angry with the Ministry for not only steering us in the wrong direction, but actually WARNING us not to go anywhere near FEAT. Luckily, that piqued our curiosity and we logged on the next day only to discover a group of people who have no other agenda than to do what's best for their kids and who make a hell of alot more sense than just about any "professional" we have encountered on our adventure in the world of services for Autistic kids. Good luck and hang in there.

[Deleted User]

S.E.A. Position Available

We are recruiting for a therapist who is interested in working in school as our child's S.E.A./therapist.

This temporary S.E.A. position starts in January, 2004 and ends in June, 2004.

Training on our home-based team is mandatory and will begin immediately.

This is an excellent opportunity for A.B.A. therapists seeking the experience of doing A.B.A. in a classroom.

Resumes including references can be e-mailed to: a6a81101@telus.net (please note the e-mail a,six,a,8,1,1,zero,1 – six and a zero not b and O)

Thanks

[Deleted User]

Anonymous no.2 to anonymous:
your child might have unpleasant feeling during the defecation caused by constipation. This could be possible reason to withold the stool.

The constipation is often caused by improper hydration or nutrition, food allergies, yeast overgrowth, slowed peristaltic movements, low physical activity.
You should get some laboratory testings done but also consult a dietitian.

We used to have similar problem with our child.
What helped us the best were a proper diet and supplementation with gut friendly bacteria, acidophilus and bifidus strain (jogurt or capsules).

[Deleted User]

Elna, you aren't the only one wondering where that AS of BC list comes from. What I've been able to discover is that they don't make the list. They apparently just distribute it for the Ministry Against Children and Families, and it's they who make the list. So if you're a bonafide Lovaas-ABA provider, then you probably get on it if you go through enough hoops that they can't refuse. And if you're one of the hacks, quacks and flaks who make up the government's list of paid porkers at the public trough, then you get on the list the easy way. As usual for our families, it's caveat emptor. Ask for references, ask for CVs from staff and lists of where they attained their Lovaas Autism Treatment qualifications (hint-Gutway and Popoff don't count), and see if they pass the sniff test. Many of the so-called providers on that list smell like bacon, and have been immortalized in BC court judgements as the providers of babysitting services. They shall go nameless, but you may know who they are.

There may be more I don't know on the list who are qualified, but I'd start with these-they are the ones I have at least heard something good about.

ABC Lisa Wincz Tel: (973) 898-9880 (office out of province)

Autism Partnership Andrea Sharpe Tel: (604) 632-4249

Autism Partnership (California) Tel: (562) 431-9293

Early Autism Project #103 – 3991 Henning Dr., Burnaby, B.C. Tel: (604) 473-5011

Catherine Sharpe, London, ON, Tel: (519) 645-9084 E-mail: Catherine_sharpe@sympatico.ca

Young Autism Porject (UCLA) Lovaas Tel: (310) 825-2961

Able Clinic Dr. Glen Davies Rachel D. Russell #6 – 15243 91 st Avenue, Surrey, BC V3R 8P8 Tel: (604) 584-3450 ext #9 Fax: (604) 584-3457 E-mail: rachelrussell74@hotmail.com

Lorelei Dake, Delta, BC, Tel: (604) 952-2036 E-mail: leidake@yahoo.com

[Deleted User]

I hope someone can help with a problem we are having with our 5 year old high functioning autistic son. Although our son was successfully potty trained at about 3 years old, he started to withhold bowel movements when he was nearly 5 years old. We have no idea why. We have now had him on laxatives and mineral oil for about 8 months. Whenever we try to cut back on the mineral oil or laxatives, he vigorously withholds his bowel movements. It is very extreme. We have talked to doctors and to our ABA consultant but no one has any answers. We introduced a powerful reinforcer for after bowel movements, but that didn't work. The witholding exacerbates all of his other autistic symptoms and it is very distressing. Has anyone out there had a similar experience and does anyone have any suggestions? We are out of ideas and desperate.

Thanks

[Deleted User]

AUTISM BEHAVIOURAL THERAPIST TRAINING WORKSHOP

FEAT of BC Island Chapter is sponsoring a 1-day workshop on the implementation of behavioural treatment of autism spectrum disorders based on the techniques of Lovaas-style ABA.

The workshop will include general information on autism and behavioural theory, but will focus primarily on the practical aspects of delivering effective behavioural autism treatment.

Topics to be covered:
· discrete trail techniques
· basic principles of behaviour modification therapy
· data collection
· commonly used behavioural analysis terminology

Who can benefit from this workshop:
· present and potential behavioural therapists
· classroom assistants
· aides or other individuals interested in working with children with autism spectrum disorders.

DATE: Saturday, November 8, 2003
TIME: 9:00 am – 5:00 pm
LOCATION: University of Victoria
COST: $25.00
PRESENTERS: Senior Behavioural Instructors Theresa Tournemille and Michelle Karren.

More information and registration details at http://www.featbc.org/downloads/abtw.pdf

[Deleted User]

Hey Guys —

Just ordered two amazing books and a website I highly recommend and would like to share!

1. Thinking about YOU Thinking About ME by Michelle Garcia Winner

2. Navigating the Social World by Jeanette McAfee

3. Web site : http://www.eclpublications.com
We've ordered some powerful programming materials from here for personal planning, inferences, etc… check it out, they have everything under the sun!

Have a Great day.

tamara

[Deleted User]

Hi all,
Is there anyone from White Rock/Surrey interested in carpooling to the SFU Workshop on Saturday, Sept.27?? Please call Valerie 604-531-5117.
Thanks

[Deleted User]

Thank you Avery and others for sharing your success stories. As a mother with a recently diagnosed child, it's so (very) exciting to hear other children's milestones. I know there are a lot of baby steps along the way, but I love to hear how other children are progressing. It gives me hope for my 2 year old.
I would love to hear more of how other children are succeeding in their programs.
I think it is also nice of you to acknowledge those who have given you so much help along the way. I think people sometimes don't realize how much they do for us.
Thanks again.

[Author]

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