This topic contains 1,203 replies, has 235 voices, and was last updated by  bsharpe 2 months, 2 weeks ago.

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  • #73

    FEAT BC Admin
    Keymaster

    In this topic area, discussion is on all issues relating to setting up and running a home-based intervention program. Please feel free to bring up any problems or suggestions. Parents can help each other greatly by sharing information and giving suggestions.

    In addition to parents helping parents, A.B.A. professionals on in the Discussion Group can also help provide insight and guidance.

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  • #884

    Deleted User
    Member

    Dear Anonymous,

    Regarding the family with the hearing impaired child with Autism. I've recently taken some graduate Special Education courses on Autism that dealt with this issue. Every child is an individual, but to relate this issue to another…A family of a deaf Autistic child went through years of struggling to teach their child to communicate through sign only to realize the extreme transcience of sign language. Also, they were frustrated to find out the few words learned by their child could only be understood by them. They decided to try PECS (picture exchange communication). This may not be the option for this child, but it is worth investigating. Pictures given or pointed to to express wants/ needs that are universally understood. Once this is mastered a vocalization can be paired with the picture (if possible) and for some children this can lead to completely oral communication. PECS could also solve the lack of sign trained therapists problem. There was a dramatic change with this child, they used CBI consulting in Vancouver. I highly reccommend them.
    I hope this helps a bit

    #883

    I am interested in finding caregivers/babysitters for overnight trips and casual work. I have a 6 yr-old son with Autism and a non-Autistic 10 yr-old daughter. Live in West Vancouver, in a pleasant neighbourhood with lots of parks and amenities. Two cute dogs and a cat. I pay well. Must be non-smoking, prefer non-drinking, extremely kind and responsible, as well as patient. Use of truck while caregiving overnight. Must have terrific references.
    Call Dave Bridges at 913-3343

    #882

    Deleted User
    Member

    I am seeking information for a Coquitlam family who have a 5 year old boy who has autism as a main presenting feature, but is also hearing impaired. Any attempts at communication are done by sign. I am trying to gather some information for them re. What consultants can put together an A.B.A. program using sign language, AND, JUST AS IMPORTANTLY,does anyone know of any Therapists who can deliver the program in sign to the child?Without these two things occuring,it would be very difficult to set up an A.B.A. program. Please give it some thought and email post any and all suggestions/information you have as soon as you can. Thanks!

    #881

    David Chan
    Member

    There is a new A.B.A. consulting firm. This firm
    was refered to us by C.E.E. (center for Early
    Education). The firm is called

    Autism Spectrum Consultants
    contact:
    Dawn Enoch
    (858) 456-2272

    Because they are a new start up company.
    Currently there is no waiting list.

    Please note, that there are no local families
    using this firm. Please check referneces
    carefully. If anyone does retain them; F.E.A.T.
    would appreciate any feedback and
    experinece with them.

    #880

    Linda Cucek
    Member

    To- Gary Ferrell-Collins
    BC Liberal Finace Critic
    From: Linda Cucek
    Re: Formal Complaint regarding Insufficient Support

    Dear Mr. Gary Ferrel-Collins:

    We as James Cucek’s parents are writing to you in regards to insufficient support.

    Our son James Cucek, has a multiple diagnosis of Autism and Schizophrenia & psychosis.
    It has been at least seven weeks since James has been discharged from Children’s Hospital and there is still no youth care worker working with him, yesterday Katherine Urquhart, came to visit me with Lyn Taylor Scott, Coordinator of Respite Services, Katherine told me I would be getting ten hours a week for James a Youth Care worker. Our family has been in need of a Youth Care worker for sometime.

    The Laurel Group has been involved since November, we feel that ten hours a month that is allocated to each client, which includes telephone calls, meetings, report writing and travel time is not enough for a child such as our son James which has multiple diagnosis and she does not address our needy child .
    James requires a skilled consultant who probably spends 30 hours the first month to six weeks observing him. This has not happened to our son James. This consultant left on a month holiday, just as James was released from the hospital and at this time we needed her the most, and no one else was able to offer back-up when she left.
    We have had no training. We need to be taught exactly how to deal with James’ Autism and other diagnosis. We are also worried about the effects of the medications on James behavior. We will need a great deal of coaching in order to support James to become independent. We would feel more comfortable with CBI Behavior consultant.
    James, was born in 1984 – I have had no supports since late last year when our family began to become very stressed out on how to deal with James, I feel its time we get the proper supports in place.

    Best Regards,
    Stan & Linda Cucek

    PS I listened to a talk show you were on – you mentioned that the funds in excess of seven hundred million dollars were initially "ear marked", for health. The former minister of finance said it was not approved and therefore never released – over one hundred million dollars was set aside for disability children is this why my son James and other children are not getting the proper support? Please email me back I would like your answers to my questions and suggestions on what to do? The Mayor of Port Moody, wrote a letter to Mike Fernsworth, Minister of Health – because I have no supports in place for James and he never replied back. Also, I read in the newspaper a disability person with Schizophrenia was shot because he was on the streets and didn't take his medications – I feel there is no proper supports for disability people at all. Something has to be done about this.
    I WOULD LIKE TO EXPLORE A CLASS ACTION LAWSUIT.

    MY SON JAMES IS 15 YEARS OLD, I BELIEVE LOVAAS
    WAS AVAILABLE WHEN JAMES WAS YOUNGER BUT NOT OFFERED TO
    OLDER CHILDREN AT THIS TIME WITH AUTISM.

    PLEASE GET IN TOUCH WITH ME IF YOU HAVE A TEENAGER
    THAT HAS AUTISM SO WE CAN GO IN AS A GROUP TO EXPLORE A CLASS
    ACTION LAWSUIT FOR LOVAAS.

    MY PHONE NUMBER–936-3635 LINDA CUCEK
    Please tell me what you think about this? F.e.a.t. is suiing for the younger children regarding Lovaas treatment, but also the older children need this treatment.

    #879

    To Sharon Baxter:

    Sharon, you said I would be able to download a registration form for the next ABA workshop on May 13/2000. Forgive my bad memory, but could you tell me where I can find this? Thanks.
    Dave Bridges (davidbridges@home.com)

    #878

    Deleted User
    Member

    Shannon Rodrigue, An Autism Consultant From the
    Centre for Early Eduacation will be interviewed on
    The Early Edition on CBC Radio, At 7:00am
    April 14th,2000. Please try and tune in for more information on Effective Autism treatment.

    #877

    Linda Cucek
    Member

    I WOULD LIKE TO EXPLORE A CLASS ACTION LAWSUIT.

    MY SON JAMES IS 15 YEARS OLD, I BELIEVE LOUVAAS
    WAS AVAILABLE WHEN JAMES WAS YOUNGER BUT NOT OFFERED TO PARENTS AT THIS TIME WITH AUTISTIC CHILDREN.

    PLEASE GET IN TOUCH WITH ME IF YOU HAVE A TEENAGER
    THAT HAS AUTISM SO WE CAN GO IN A GROUP TO EXPLORE A CLASS ACTION LAWSUIT FOR LOUVAAS.

    MY PHONE NUMBER–936-3635 LINDA CUCEK

    #876

    When is the next ABA therapist workshop at UBC?
    Thanks,

    Dave Bridges

    #875

    Sabrina Freeman
    Participant

    RE: New York State Department of Health Clinical Guidelines for Autism

    To those of you interested in buying a copy of the New York State Department of Health Clinical Guidelines for Autism, FEAT BC has just purchased a large quantity. We will be offering this important document at cost ($15.00 CDN) at the parent discussion groups that meet every third Wednesday of the month.

    Anyone who would like to buy a copy but is unable to attend FEAT meetings, the NY Report is available directly from the distributor. Their phone no. is: (518) 439-7286.

    This report is a must for parents with newly diagnosed children who want to know what science based evidence there is for autism treatments and interventions.

    Sabrina

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