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  • #75

    FEAT BC Admin
    Keymaster

    In this topic area, discussion is about the fight to secure Government funding for your A.B.A. treatment program. It is also the place to talk about your thoughts and ideas about how to establish new Government programs specifically designed for autism treatment.

    This is the place to hear input from parents who have fought for funding and won, as well as those who have fought for funding and would like to share their horror stories. There is a tendency to not share success stories once funding is secured. Please fight that tendency. By sharing our experience, we all become stronger.

     


    —-By FEAT BC (Freeman) on Saturday, January 3, 1998 – 03:16 pm:

    -Hi everyone!

    These are some things to think about in your dealings with government to help you to obtain support for your child’s Autism Treatment Program. These are my personal opinions and do not represent those of FEAT of BC or any other organization.

    Many of these observations are based on my personal experiences (and I believe it poetic justice to help every parent avoid being systematically abused by their social worker the way I was).

    Good luck to everyone! (Let’s all pull back the curtain on the Wizard of OZ).

    Sabrina

     


    How To Fight for Funding for Autism Treatment and Appropriate School Placement

    1. Establish a Paper Trail

    Always take notes, documenting major points of all conversations with government and school officials.

    This includes casual, in person conversations with social workers as well as ALL telephone conversations. All key points of discussion must be written down in your notes including the date and time of the discussion. This includes what was agreed upon, as well as what was not agreed upon.

    Then the notes should be used to write a letter recapping the substance and content of the conversation. This letter must then be mailed or faxed to the person with whom you had the conversation. In addition, a copy must be kept in your file (see section on the icci game).

    Why?

    It is important to formalize the interaction between you and Government officials. In addition, everyone is put on notice that they must closely adhere to their responsibilities, regulations and laws., Furthermore, they must then consider the paper trail you have created. This lets everyone know that the interaction can become public and that any abuses of power and authority can be formally appealed and/or publicized.

    In other words, they canit use discretion unfairly under the cloak of secrecy.

    2. Submit all Requests in Writing

    All your requests for your child must be submitted formally in writing with a copy included in your file and a copy, if necessary, sent to their immediate superiors.

    3. Set Deadlines for Action

    All formal requests for action must have a reasonable deadline set for that action. If no action or response is received by the deadline you have set (two weeks for example), then you will interpret the lack of response as a formal declination (a formal NO) of your requests.

    Why Set Deadlines?

    When bureaucrats do not want to do something, they will stall by ignoring you and your request. (As an aside, in the study of the bureaucracy, this is known as ithe power to do nothingi). They can string you along for years. When you have determined that the person you are interacting with is not inclined to help you or is not dealing in good faith, then you must take the initiative and formally label his/her behavior as obstructionist and de facto as a declination (a NO to your requests). This allows you to move to the next level of authority on your timetable to present your case. This takes the power to do nothing away from the bureaucrat with whom you are dealing. Simple stated, a bureaucrat who stalls and does nothing becomes irrelevant (use your invisible spray) and you move on to the next level of authority.

    How to icci?

    A cc. is a copy of your letter sent to someone other than the person you are writing. You put the cc. at the bottom left-hand corner of your letter followed by 2 spaces and the name of the person or people to whom you want to send a copy of the letter.

    Who to icci to?

    Sometimes it is best not to icci at all, especially in the early stages of the relationship (for example, your first letter to a social worker requesting assistance). This gives them the opportunity to do the right thing and does not present you as an overly combative person. When you start to run into problems, it is a good idea to send the icci to the 2 immediate superiors of the person you are having problems with. We do not recommend icciing all the way up the chain of command, since you want to give them a chance to solve the problem at the local level.

    Why send a icci copy?

    The reason for playing the icci game is that you want your interactions with the official to be known to his superior and possibly to other organizations so that 1) their action or inaction becomes a matter of record and 2) the individual knows he is being monitored. This helps minimize abuses of power and authority and helps encourage the official to meet their obligations and do the right thing.

    What is the sequence of letters?

    Find out the chain of command of the particular bureaucracy you are battling.

    TOP

    Minister
    Deputy Minister
    Children’s Ministry’s local region chain of command, all the way down to the District Supervisor
    and Social Worker
    Contacts can be found at the government directory: http://www.dir.gov.bc.ca/

    BOTTOM

    Start at the bottom and climb. At the Regional Operating Officer (ROO) level (once you have been declined) you have to decide whether to jump up to the top, threaten and then go to the media, or both. A word of wisdom: DO NOT BLUFF. If you are not willing to go all the way, they will ‘smell’ this. You must be prepared to take it right up to the Minister and beyond.

    Documentation from Experts:

    In your arsenal to fight for your child, it is wise to get his/her pediatrician and/or psychiatrist to write a letter on your childis behalf. In addition, any other experts who know your child and are sympathetic to what you are trying to do should become involved.

    When to hire a lawyer?

    If money is not an issue, you can hire a lawyer when you get to the area manager level. Make sure that you have a paper trail so the lawyer has something to work with. Also, have the lawyer give F.E.A.T. of B.C. a call, and we will send him/her information that will help.

    If money is an issue (as it is for most of us running autism treatment programs), you might want to hire a lawyer once you have been turned down by the Minister.

    How to hire a lawyer?

    The type of lawyer needed is a litigator, or trial lawyer. S/he does not need to be an expert in autism, or special needs; s/he needs to be experienced in suing governments, and enjoys being in court. Word of mouth is a good way to find a lawyer.

Viewing 10 replies - 1,741 through 1,750 (of 1,792 total)
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  • #2531

    Susan Burns
    Member

    hi linda i will go to mr. farnswoth office with you in vite other family members to join us…..spbpt@hotmail.com 467-8313

    #2530

    Isaac
    Participant

    Two new stories added today to the FEAT BC media page … "Mom tackles government for failure to help" Vancouver Province 09/01/2000, and "Mother of autistic son launches human-rights [action against BC's Dosanjh government]", Coquitlam Now News, 09/13/2000.

    These and other stories are at http://featbc.org

    Isaac
    (Miki's Dad)

    #2529

    Linda Cucek
    Member

    Hi its Linda Cucek, I have an article titled " Port Moody mother of autistic son launches human rights complaint, it in the Now paper today on page 12.

    There has been a new release concerning health care. I was speaking with Lou Sekora's secretary and she mentioned to me that we should lobby the new Health Transition Fund for Primary care–$800 million to help children with early intervention and autism devlopment programs etc.

    We would need to go as a group of parents to visit Mike Farnsworth's office and mention the new release regarding the new Health transition fund.

    If anyone is interested in lobbying this new release for funds such as Lovaas, please give me a call at 936-3635.

    Regards,

    Linda Cucek (James' mom)

    #2528

    Hi:

    This is to the parent considering moving to San Jose, California. If you are on the melist that would be a good place to post your question. If not, I could forward it for you to them if you wish.

    You may email me privately if you like.

    Barbara at joe_rodrigues@bc.sympatico.ca

    #2527

    Deleted User
    Member

    Hi everyone,
    I am considering moving to San Jose (California) area, hoping that our son's ABA will get funded by either the State government or the school district. (I do not hold much hope for BC government.) Does anyone know how it is funded in that area? (I'm assuming that it is funded; but I'm prepared for a complicated process.)
    Thanks a lot.

    #2526

    Linda Cucek
    Member

    I am in the Province Newspaper today on page A-13-
    Mom Tackles Government–check it out.

    Linda Cuek James' Mom

    #2525

    Linda Cucek
    Member

    I was on the Bill Good Show today–

    I am on the 11:05 show at track 43 or 44 — talking
    1) Go to the CKNW website at http://www.cknw.com

    2) Click on the link that says "Audio Vault".

    3) Click on the Bill Good Show
    August 30 . I was the second caller.

    The subject had to do with the Supreme court decison regarding Lovaas Treatment regarding autistic children.

    Best Regards, Linda Cucek James' Mom

    #2524

    Linda Cucek
    Member

    I was on the Bill Good Show today–

    I am on the 11:05 show at track 43 or 44 — talking
    1) Go to the CKNW website at http://www.cknw.com

    2) Click on the link that says "Audio Vault".

    3) Click on the Bill Good Show
    August 30 . I was the second caller.

    The subject had to do with the Supreme court decison on autistic children.

    Best Regards, Linda Cucek James' Mom

    #2523

    Isaac
    Participant

    The Vancouver Sun ran a story today about the Government's appeal of the BC Supreme Court Decision (link below). Thank you to Jean Lewis for giving a strong interview to Sun reporter Neil Hall.

    BCTV will be covering the story today (08/29) as is CBC NewsWorld.

    Isaac

    http://www.vancouversun.com/newsite/news/000829/4667316.html

    #2522

    Isaac
    Participant

    RE: Lovaas Treatment/ABA article in MacLean’s Health section

    Hi everyone,

    MacLean’s magazine hit the stands today (Sept. 4 edition) with a feature on autism and ABA in the Health section. The article is well done: legal issues and the BC Supreme Court victory are discussed; Lovaas Treatment/ABA is a major focus of the piece; government neglect is mentioned, as is the impending Lovaas/ABA law suit against the Government of Nova Scotia.

    We encourage everyone to support this type of positive coverage in Canada’s leading, national newsmagazine by purchasing one or more copies to distribute to key people you may know e.g. relatives, your MLA & MP, Doctors, School District administrators, local media people … and yes, even local MCF staff. The article will give your fight a big boost in legitimacy amongst those you know and those whose opinion you are working to sway.

    Please write to the Maclean’s editor expressing your views on the story and the issue of public health care funding for autism treatment.

    A copy of the Feat BC press release about the BC Government’s appeal of the BC Supreme court decision is available at http://featbc.org/downloads/appealrelease.pdf — many thanks to Avery Raskin (Ariel's Dad) for on going press relations support!

    Isaac (Miki’s Dad)
    Feat of BC

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