This topic contains 1,814 replies, has 143 voices, and was last updated by  Laurie Guerra 5 hours, 53 minutes ago.

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  • #75

    FEAT BC Admin
    Keymaster

    In this topic area, discussion is about the fight to secure Government funding for your A.B.A. treatment program. It is also the place to talk about your thoughts and ideas about how to establish new Government programs specifically designed for autism treatment.

    This is the place to hear input from parents who have fought for funding and won, as well as those who have fought for funding and would like to share their horror stories. There is a tendency to not share success stories once funding is secured. Please fight that tendency. By sharing our experience, we all become stronger.

     


    —-By FEAT BC (Freeman) on Saturday, January 3, 1998 – 03:16 pm:

    -Hi everyone!

    These are some things to think about in your dealings with government to help you to obtain support for your child’s Autism Treatment Program. These are my personal opinions and do not represent those of FEAT of BC or any other organization.

    Many of these observations are based on my personal experiences (and I believe it poetic justice to help every parent avoid being systematically abused by their social worker the way I was).

    Good luck to everyone! (Let’s all pull back the curtain on the Wizard of OZ).

    Sabrina

     


    How To Fight for Funding for Autism Treatment and Appropriate School Placement

    1. Establish a Paper Trail

    Always take notes, documenting major points of all conversations with government and school officials.

    This includes casual, in person conversations with social workers as well as ALL telephone conversations. All key points of discussion must be written down in your notes including the date and time of the discussion. This includes what was agreed upon, as well as what was not agreed upon.

    Then the notes should be used to write a letter recapping the substance and content of the conversation. This letter must then be mailed or faxed to the person with whom you had the conversation. In addition, a copy must be kept in your file (see section on the icci game).

    Why?

    It is important to formalize the interaction between you and Government officials. In addition, everyone is put on notice that they must closely adhere to their responsibilities, regulations and laws., Furthermore, they must then consider the paper trail you have created. This lets everyone know that the interaction can become public and that any abuses of power and authority can be formally appealed and/or publicized.

    In other words, they canit use discretion unfairly under the cloak of secrecy.

    2. Submit all Requests in Writing

    All your requests for your child must be submitted formally in writing with a copy included in your file and a copy, if necessary, sent to their immediate superiors.

    3. Set Deadlines for Action

    All formal requests for action must have a reasonable deadline set for that action. If no action or response is received by the deadline you have set (two weeks for example), then you will interpret the lack of response as a formal declination (a formal NO) of your requests.

    Why Set Deadlines?

    When bureaucrats do not want to do something, they will stall by ignoring you and your request. (As an aside, in the study of the bureaucracy, this is known as ithe power to do nothingi). They can string you along for years. When you have determined that the person you are interacting with is not inclined to help you or is not dealing in good faith, then you must take the initiative and formally label his/her behavior as obstructionist and de facto as a declination (a NO to your requests). This allows you to move to the next level of authority on your timetable to present your case. This takes the power to do nothing away from the bureaucrat with whom you are dealing. Simple stated, a bureaucrat who stalls and does nothing becomes irrelevant (use your invisible spray) and you move on to the next level of authority.

    How to icci?

    A cc. is a copy of your letter sent to someone other than the person you are writing. You put the cc. at the bottom left-hand corner of your letter followed by 2 spaces and the name of the person or people to whom you want to send a copy of the letter.

    Who to icci to?

    Sometimes it is best not to icci at all, especially in the early stages of the relationship (for example, your first letter to a social worker requesting assistance). This gives them the opportunity to do the right thing and does not present you as an overly combative person. When you start to run into problems, it is a good idea to send the icci to the 2 immediate superiors of the person you are having problems with. We do not recommend icciing all the way up the chain of command, since you want to give them a chance to solve the problem at the local level.

    Why send a icci copy?

    The reason for playing the icci game is that you want your interactions with the official to be known to his superior and possibly to other organizations so that 1) their action or inaction becomes a matter of record and 2) the individual knows he is being monitored. This helps minimize abuses of power and authority and helps encourage the official to meet their obligations and do the right thing.

    What is the sequence of letters?

    Find out the chain of command of the particular bureaucracy you are battling.

    TOP

    Minister
    Deputy Minister
    Children’s Ministry’s local region chain of command, all the way down to the District Supervisor
    and Social Worker
    Contacts can be found at the government directory: http://www.dir.gov.bc.ca/

    BOTTOM

    Start at the bottom and climb. At the Regional Operating Officer (ROO) level (once you have been declined) you have to decide whether to jump up to the top, threaten and then go to the media, or both. A word of wisdom: DO NOT BLUFF. If you are not willing to go all the way, they will ‘smell’ this. You must be prepared to take it right up to the Minister and beyond.

    Documentation from Experts:

    In your arsenal to fight for your child, it is wise to get his/her pediatrician and/or psychiatrist to write a letter on your childis behalf. In addition, any other experts who know your child and are sympathetic to what you are trying to do should become involved.

    When to hire a lawyer?

    If money is not an issue, you can hire a lawyer when you get to the area manager level. Make sure that you have a paper trail so the lawyer has something to work with. Also, have the lawyer give F.E.A.T. of B.C. a call, and we will send him/her information that will help.

    If money is an issue (as it is for most of us running autism treatment programs), you might want to hire a lawyer once you have been turned down by the Minister.

    How to hire a lawyer?

    The type of lawyer needed is a litigator, or trial lawyer. S/he does not need to be an expert in autism, or special needs; s/he needs to be experienced in suing governments, and enjoys being in court. Word of mouth is a good way to find a lawyer.

Viewing 10 replies - 1,711 through 1,720 (of 1,814 total)
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  • #2583

    Linda Cucek
    Member

    Just a note regarding the Sun Press release as follows:

    Campbell received a big hug from a Port Moody mother Monday night when he promised to look into her son's health care needs.
    Linda Cucek, said her autistic son James, 16, requires an intensive therapy called the Lovaas treatment to improve his quality of life, but didn't receive it under the NDP. "Hang in there, it will get taken care of," said Campbell during a campaign stop in Port Moody. "We're going to make sure that parents have the opportunity to get the treatment for their children they think is most appopriate.

    Letter I mailed to Now Paper:

    ATT: Now newspaper

    Autism is a neurologic disorder that adversely affects virtually every aspect of daily life. The deficits of autistic individuals are most acute in regard to communication and socialization skills. There is no cure for autism, but strategies do exist that work to dramatically improve the challenges of day-to-day functioning. Families living with autism have been advocating for years to achieve these highly effective services for their children, even going as far as taking the NDP government all the way to BC’s Supreme Court. Last July, there was a landmark decision by BC Supreme Court's Madame Justice Marion Allen that favored the constitutional rights of autistic children. Justice Allen's findings deemed that the ABA/Lovaas treatment therapy was indeed a "medically-necessary" service, and found that the NDP government was guilty of discrimination against autistic children for not providing such. The NDP's response to these findings was to appeal the decision thereby indefinitely suspending any forthcoming justice for the province's autistic children. At the April 23rd provincial Liberal political rally here in Port Moody, I had the honor and opportunity, "on-camera (Canadian Press)" no less, to ask Mr. Campbell directly, if a provincial Liberal government would make the Lovaas autism treatment available to my 16-year-old son, James.
    Mr. Campbell's response? He gave me a hug, and told me "YES"!!
    I couldn't help myself, I started to cry……Gordon Campbell's personal response is truly significant….quite simply, it replaces hardship with hope.
    I would like to encourage every voter to cast their ballot in the favor of such compassion and common sense, and VOTE LIBERAL !!
    Linda Cucek, James' mom
    1916 Clarke Street
    Port Moody, BC, V3H 1X9
    604-936-3635

    Best Regards,

    Linda Cucek

    Witnesses who heard Gordon Campbell’s promise:
    Sukie Shoker—306-2378
    Martha Lee—469-9481
    Stuart Cardwallader—464-2119

    Dirk Meissner—Canadian Press BN Radio—Reporter that took my story… he is traveling with Gordon Campbell—they are in Prince George… Also, Scott Sutherland BN Radio.

    Email: cucek@home.com

    Linda Cucek

    James' Mom

    #2582

    Letty James
    Member

    Did anyone see the Port Moody City Hall Ralley on Television?

    Please contact Linda Cucek– email cucek@home.com

    Best Regards,

    James' mom Linda Cucek

    #2581

    Letty James
    Member

    Hi its Linda Cucek, I was at the Liberal Party Ralley tonight. I happened to get on TV and
    ask Gordon Campbell, " if he becomes Premere that he would promise to let my son James, have the Lovaas Treatment", he replied yes and gave me a big hug. It was on BCTV. Three reporters took my name and phone number. Email: cucek@home.com

    Regards,

    James' Mom Linda Cucek

    #2580

    Sabrina Freeman
    Participant

    Hello FEAT BC!

    Here is what you can do in this election to help children with autism.

    There are nineteen (19) ridings in BC that are of special interest in the upcoming election. It is in these communities that FEAT parents can make an important contribution to our cause — here’s how.

    Please take the time to write a letter to the editor of your local paper describing how this Government has failed your child who is struggling against autism. This is one of the few times that letters to the editor are VERY effective!

    The most important ridings to target :

    – Vancouver-Mount Pleasant: NDP Jenny Kwan vs. Liberal Gail Sparrow
    – Vancouver-Kensington: NDP Ujjal Dosanjh vs. Liberal Patrick Wong
    – Vancouver-Hastings: NDP Joy MacPhail vs. Liberal David Lee
    – Vancouver-Kingsway: NDP Alicia Barsallo vs. Liberal Rob Nijjar
    – New Westminster: NDP Graeme Bowbrick vs. Liberal Joyce Murray
    – Powell River – Sunshine Coast: NDP Gordon Wilson vs. Liberal Harold Long

    Other closely contested ridings:

    – Victoria-Hillside: NDP Steve Orcherton vs. Liberal Sheila Orr
    – Victoria-Beacon Hill: NDP Carole James vs. Liberal Jeff Bray
    – Esquimalt-Metchosin: NDP Maurine Karagianis vs. Liberal Arnie Hamilton
    – Surrey-Walley: NDP Joan Smallwood vs. Liberal Elayne Brenzinger
    – Surrey-Green Timbers: NDP Sue Hammell vs. Liberal Brenda Locke
    – Nelson Creston: NDP Corky Evans vs. Liberal Brian Suffredine
    – Maple Ridge-Pitt Meadows and Mission Kent
    – Cariboo South: NDP Dave Zirnhelt vs. Liberal Walt cobb
    – Prince George-Omineca: NDP Ed John vs. Liberal Paul Nettleton
    -North Coast: NDP Colleen Fitzpatrick vs. Liberal Bill Belsey
    – Malahat-Juan de Fuca: NDP Richard Hughes vs. Liberal Brian Kerr
    – West Vancouver-Capilano: NDP Matt Lovick vs. Liberal Ralph Sultan
    – Surrey-Cloverdale: NDP Steve Oakley vs. Liberal Kevin Falcon

    Please feel free to use ideas from any postings on the FEAT BC discussion board and any information on the FEATBC web-site.

    Let’s make British Columbia the best place for children with autism!

    Sabrina
    (Miki's mom)

    #2579

    Regarding the Libs rally in Port Moody, I
    encourage as many parents within shooting
    distance to attend as possible. Be friendly, be
    sure to speak to Christy and Gordon, if
    possible, be sure to thank them for their
    enthusiastic support for our kids while they
    toiled in opposition, and thank them in
    advance for the immediate and sweeping
    changes they are going to make to how the
    BC government treats our children.

    Bear in mind, everyone — after the big day, they
    are going to be swamped with the incredible
    ugly mess the NDP will leave behind. We don't
    want to get lost in the shuffle while they attend
    to billion-dollar Knee Dipper fiascoes.

    #2578

    Regarding the Libs rally in Port Moody, I
    encourage as many parents within shooting
    distance to attend as possible. Be friendly, be
    sure to speak to Christy and Gordon, if
    possible, be sure to thank them for their
    enthusiastic support for our kids while they
    toiled in opposition, and thank them in
    advance for the immediate and sweeping
    changes they are going to make to how the
    BC government treats our children.

    Bear in mind, everyone — after the big day, they
    are going to be swamped with the incredible
    ugly mess the NDP will leave behind. We don't
    want to get lost in the shuffle while they attend
    to billion-dollar Knee Dipper fiascoes.

    #2577

    FEAT BC Admin
    Keymaster

    By Linda Cucek (James' mom)

    _____________________________

    Dear Linda Cucek:

    One of our volunteers spoke with you recently, and you indicated that you were interested in attending our Campaign Kick Off Rally.

    The rally will be held on Monday April 23, 2001 at 6.30 pm.in the Galleria of Port Moody City Hall.

    Please try to attend, with as many friends as possible, because we want a large gathering to show out support for the B.C. Liberal Party and
    welcome Gordon Campbell to our riding. Note: children are welcome.

    Christy Clark

    _____________________________

    #2576

    Sabrina Freeman
    Participant

    TO: FEAT of BC families
    FROM: Sabrina Freeman
    RE: Government’s autism program known as “P-CARD”
    ***************************************************************

    Hello everyone — welcome to the 2001 election!

    This announcement is for all FEAT BC parents.

    Heading into this election, we anticipate there may be some additional media focus on the ongoing autism controversy between families and the BC Government. In this regard, we ask any FEAT BC parents who have had experience with the Government autism project known as “P-CARD”, to please contact us to describe your experience with Government's autism program — presented in BC Supreme Court as the solution to court-ruled “direct discrimination” against our children’s constitutional right to equal access to publicly funded health care.

    To all families who have attempted to get their child into the P-CARD intervention pilot program — or families who have experience in the government program — please write us (or call FEAT of BC, Ph. 534-6956); we very much want to know about experience you’ve had with Government’s program for autism intervention (or your attempts to get into P-CARD).

    Thank you, and please encourage everyone you know to VOTE … for the sake of all our children!

    Best Regards,
    Sabrina (Miki’s Mom)

    Ph. 604-534-6956
    Fx. 604-534-9527
    mailto:skfreeman@featbc.org

    #2575

    Isaac
    Participant

    Follow-up to the discussion board post of 04/12/01, RE: “gem from former MCF Minister, Penny Priddy”, from her comments made to the Vancouver Sun as Government adjourned the legislature this week.

    The post states:

    “For the first time in B.C. history, Government was accused and found guilty of violating the constitutional rights of disabled children; for the first time in Canadian history, government was accused and found guilty of neglecting to provide or fund “medically necessary” treatment. All this during Minister Priddy’s tenure at the helm of the Children’s Ministry. This shameful history is part of the Priddy legacy too.”

    In fact, the impetus for the autism treatment legal action and the court judgments all happened during Minister Priddy’s tenure at the helm of not only the Children’s Ministry, but also the Health Ministry AND the Education Ministry. Minister Priddy headed ALL three Ministries at various times from Sept. 1996 through November 2000.

    Only one government cabinet minister has the dubious distinction of serving as head of all three ministries originally named in the Auton case — interesting legacy indeed.

    Isaac (Miki’s Dad)

    #2574

    Isaac
    Participant

    Here’s a gem from former MCF Minister, Penny Priddy, from comments made to the Vancouver Sun as Government adjourned the legislature this week.

    "I feel incredibly nostalgic," said Priddy. "It's a huge gift we've had. I mean I spent 91/2 years in cabinet — that's an enormous gift. I've got a lot of pride in the work I've done. It feel good to point to things I believe are legacies." (Vancouver Sun, April 13, 2001)

    Funny how former Ministers come down with a case of “Selective Amnesia” after they leave office.

    Let's “point” to one of the “things” in the Priddy legacy, shall we? How about the one where negligence, incompetence and arrogance vis a vis the autism treatment controversy landed Priddy’s Ministry in BC Supreme Court … where she LOST.

    Supreme Court ruled our disabled kids are in the right; Priddy’s Ministry — leading the government charge in court — was found to be wrong (along with the rest of Government).

    For the first time in B.C. history, Government was accused and found guilty of violating the constitutional rights of disabled children; for the first time in Canadian history, government was accused and found guilty of neglecting to provide or fund “medically necessary” treatment. All this during Minister Priddy’s tenure at the helm of the Children’s Ministry. This shameful history is part of the Priddy legacy too.

    Isaac
    (Miki’s Dad)

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